Parkinson's Disease Tulip


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Old 02-18-2007, 08:47 AM #1
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Default Useful Gadgets for a PD patient to own

Have just been informed that there is such a thing as a pill cutter which is going to make my life a whole lot easier not to mention keeping my fingers intact.
I know we can all go visiting the disablity shop and have a browse around,but sorry folks...they aren`t` the most appealing of places [not in the uk anyway] brown paint and gloomy windows.My symptoms get worse just walking by.In my opinion you go there to buy something specific and then scurry out again.Denial? Of course it is...that`s how I survive....lol

Seriously...if any of you are like me you see something in a catalogue which can sing,dance,turn cartwheels,transform you into Superwoman/ Superman/
SuperTed/Noddy...blah blah blah...And then when it arrives...you attack the parcel tape like a storm trooper cos it`s set like cement...anxiously open a box the size of a television,disappear under the polystyrene blobs,emerge spitting out more blobs...and lo and behold...grasped in your mitt...is the teeny tiniest most useless looking object and not at all like the huge,robust "life transforming wondertool" that you were getting all excited about a few days earlier....well actually several months earlier cos they sold like hot cakes,had to be re-ordered...restocked..re packed...etc etc...
And the first time you try these Amazing Nose Hair Clippers [well every catalogue has them don`t they?] they make a noise like a pneumatic drill,and devour your nostrils in much the same manner.
On your return from the outpatients wing of the hospital having been treated for shock..you toss the "said" gadget in the bin and vow never to be swayed again.....until the next time.

So...now my little tale is complete...how about we get the info straight from the folk who have tried and tested these gadgets. YOU!!!
Can you all add just one object/gadget that has made your life with PD easier....like a homing device that helps you connect the butterknife with the bread. Have fun.

x
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Old 02-18-2007, 12:10 PM #2
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Default sock getter onner thingy

The best gadget i have is a thing with two straps that helps me get my socks on. Given to me by my PD nurse specialist after I said the worst thing was not being able to get socks on in the winter. It works. The only disadvangage it has is that it sometimes gets lost, and I am lost without it!
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Old 02-18-2007, 02:12 PM #3
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Default A backhoe...

...don't ask me why. It's a guy thing.

Sure could do a lot of yardwork with it.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 02-18-2007, 02:12 PM #4
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Default Didn`t know about that either

Where have I been these last few years.
GREAT GADGET. Do they do as good a job at taking your socks off again?That`s my problem.By the time I`m ready for bed,and ready to undress I am so tired,my wrists are weak and I struggle with a little thing like that....the times i`ve just thought SOD IT...and fallen into bed fully dressed.

Same with boots...but heck no...I draw the line there

Thanks. A great start to the list.
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Old 02-18-2007, 09:04 PM #5
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Long handled shoehorn will help get socks OFF!
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Old 02-19-2007, 05:52 PM #6
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Default socks and shoes

As i mentioned in another thread crocs are great for parkie toes they have lots of room to move and also since a lot of the meds seem to cause swollen ankels and feet I buy hubby the socks made for diabetics they have a huge amount of give, up until the time we found them he cut all his socks at the tops or he couldn't get them all, we have a pill cutter and yes it works great another gadget but it's down the road for a lot of you is an electric chair that goes up and down and sticks out like a lazyboy and gotta tell you when those times to get up and you struggle this thing almost has you standing,yes its a bit of a cost but if you look around when the time comes it's not all that much more than a regular old chair and a lot cheaper than one them leather lazy boy type things hubby has had his for 10 years now and we'd be lost without it at night when his meds dont always work right so take care and hope this helps someone
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Old 02-20-2007, 12:10 PM #7
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Default Useful Gadgets

I have a jar opener that I bought at a Pampered Chef party that I use all the time. It will open lids as small as fingernail polish but will also easily open new new twist off lids on paint cans! I use it as much for non-food items as I do for food.
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Old 02-20-2007, 05:18 PM #8
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oh i could do with one of those jar opener things.My hands used to be so strong..practiced piano 6 hours a day..but now i can feel my bones crack if i place even the tiniest bit of extra strain on my joints.
Have a sort of JAR KEY I think you call it but with PD..which hand do you use to turn the strap and nwhich to hold the jar?sEEMS TO ME YOU NEED GOOD STRENGTH IN BOTH HANDS FOR THAT ONE.
Can I buy your jar opener in the uk?
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Old 02-20-2007, 11:18 PM #9
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Default Jar Opener

Steffi, I looked online and Pampered Chef does sell in the UK. Here's a photo of the opener I have. I paid about $10 for it. It's really great because it doesn't take a lot of strength or dexterity to open things.


Last edited by DJM1; 02-20-2007 at 11:22 PM. Reason: Correction of hyperlink
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Old 02-20-2007, 11:27 PM #10
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Lightbulb I have no use for shoes, unless...*wink

if the shoes have a small heel for incline it does
for some reason help me walk...
otherwise- fooey on shoes....
also when we can't walk and we are stuck try to unfreeze your gaze -it is the gaze that sticks us to the floor,
If I can't walk - I'll run... however this has scared many neurologists and one
brain surgeon!
but I do it all the time...
flat sufaces are harder to walk on -so grass can be better. (barefoot)
think happy -our brain will thank you for it...
close your eyes and look at the sunny sky as often as possible, it helps the
neurotransmitters and helps the body feel happier in general...
pray for your body to be at peace...

prayer changes our thoughts,
the only constant is change -
because just because I am not brilliant like God, and I have a hard time understanding illness
and why I was born -it is I that needs to change.
because-
God is Good, God is Good all the time, God never changes!
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by
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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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