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Old 11-10-2008, 01:21 PM #1
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Default BBC News: Warning over untested web 'cures'

Warning over untested web 'cures'

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http://news.bbc.co.uk/2/hi/health/7718997.stm

Arthritis sufferer Daniella Muallem's experience of using alternative remedies

Leading medical experts are warning patients against using untested remedies advertised on the internet which, they say, sell "false hope".

The group, backed by charity Sense About Science, says vulnerable people are being increasingly exploited by the online promotion of such treatments.

Many untested remedies are expensive and do not work, and are often based on "unreliable" evidence, the experts say.
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I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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Old 11-10-2008, 09:20 PM #2
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Default Creepy figures in the shadows

While I'm sure that all the deaths from the tested medicines from the local pharmacy were covered, I think it is more interesting to consider the source Sense About Science. A few seconds with google shows them to be a bunch of right wing loonies led by two former PR flacks backed by big corporate donors to promote GM crops. One from the Guardian http://www.guardian.co.uk/education/...reducation.uk2

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Warning over untested web 'cures'

Please turn on JavaScript. Media requires JavaScript to play. Webpage includes video and audio content.
http://news.bbc.co.uk/2/hi/health/7718997.stm

Arthritis sufferer Daniella Muallem's experience of using alternative remedies

Leading medical experts are warning patients against using untested remedies advertised on the internet which, they say, sell "false hope".

The group, backed by charity Sense About Science, says vulnerable people are being increasingly exploited by the online promotion of such treatments.

Many untested remedies are expensive and do not work, and are often based on "unreliable" evidence, the experts say.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 11-11-2008, 11:58 AM #3
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Default Testing and other questionable methods....

I subscribe to the "three flags" method of determining what may be of valu to me and my PD. If one source tells me something works, or would/could benefit me, thenn within a few days a totally unrelated sourcw seems to tell me something that supports the first source, I start to pay attention. If a third source verifies what I'm hearing I have learned to sit up and evaluate it for myself. The use of common sense is sometimes of valu also.

Keep your head down and your chin up....and you'll be fine.
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