Parkinson's Disease Tulip


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View Poll Results: if you have participated in a clinical trial - click all that apply
my experience was positive 3 100.00%
my experience was positive
3 100.00%
my experience was negative 2 66.67%
my experience was negative
2 66.67%
I have participated in 1 trial 1 33.33%
I have participated in 1 trial
1 33.33%
I have participated in 2 trials 0 0%
I have participated in 2 trials
0 0%
I have participated in 3 or more trials 2 66.67%
I have participated in 3 or more trials
2 66.67%
Getting to the study center was difficult 2 66.67%
Getting to the study center was difficult
2 66.67%
Getting to the study center was easy 1 33.33%
Getting to the study center was easy
1 33.33%
I am willing to join another trial 3 100.00%
I am willing to join another trial
3 100.00%
I am not willing to join another 0 0%
I am not willing to join another
0 0%
Multiple Choice Poll. Voters: 3. You may not vote on this poll

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Old 03-07-2009, 01:09 PM #1
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jeanb jeanb is offline
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Book poll re: trial participation

Given the thread on clinical trial participation, I thought it would be interesting to have a (an unscientific) poll for the pwp on NT.

Curious will delete these polls if they are unsatisfactory - please post if you have questions you'd like polled, and we will redo!

Last edited by jeanb; 03-07-2009 at 01:21 PM. Reason: forgot!
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Old 03-07-2009, 01:38 PM #2
girija girija is offline
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How about including new participants: Would you volunteer for clinical studies?
Do you require transportation?
Or something like that.
I am curious to see if all these discussions are motivating PWPs to participate in clinical trials. I just enrolled in one!

Girija

Quote:
Originally Posted by jeanb View Post
Given the thread on clinical trial participation, I thought it would be interesting to have a (an unscientific) poll for the pwp on NT.

Curious will delete these polls if they are unsatisfactory - please post if you have questions you'd like polled, and we will redo!
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"Thanks for this!" says:
jeanb (03-07-2009)
Old 03-07-2009, 06:55 PM #3
Debi Brooks Debi Brooks is offline
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Default what influences decisions to participate in clinical trials

Some years ago, we funded a survey to better understand this issue since we frequently were told that patient recruitment was a challenge...the two most compelling inputs for patients who participated (according to our survey) were:

My physician recommended it to me.

I spoke with someone else who had a positive experience in clinical trials.

Both of these responses offer some great ideas and illuminate some challenges...but, thought folks would like to know about the survey responses.

Debi
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"Thanks for this!" says:
girija (03-08-2009)
Old 03-07-2009, 07:36 PM #4
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Default motivation

I would argue that those top responses to the MJFF survey indicate that in order to take part in a trial, PD patients need outside support for their choice, whether it be from their doctor or from the community.

Just thinking out loud here; my contention is that with the right motivation and support, clinical trials participation would increase.

How do we promote the most effective motivation; provide the proper and best support?

It's a good conversation.
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Old 03-09-2009, 04:29 PM #5
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bump.......
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