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Parkinson's Disease |
View Poll Results: if you have participated in a clinical trial - click all that apply | ||||||
my experience was positive | 3 | 100.00% | ||||
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my experience was negative | 2 | 66.67% | ||||
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I have participated in 1 trial | 1 | 33.33% | ||||
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I have participated in 2 trials | 0 | 0% | ||||
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I have participated in 3 or more trials | 2 | 66.67% | ||||
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Getting to the study center was difficult | 2 | 66.67% | ||||
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Getting to the study center was easy | 1 | 33.33% | ||||
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I am willing to join another trial | 3 | 100.00% | ||||
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I am not willing to join another | 0 | 0% | ||||
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Multiple Choice Poll. Voters: 3. You may not vote on this poll |
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03-07-2009, 01:09 PM | #1 | |||
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Senior Member
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Given the thread on clinical trial participation, I thought it would be interesting to have a (an unscientific) poll for the pwp on NT.
Curious will delete these polls if they are unsatisfactory - please post if you have questions you'd like polled, and we will redo! Last edited by jeanb; 03-07-2009 at 01:21 PM. Reason: forgot! |
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03-07-2009, 01:38 PM | #2 | ||
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Member
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How about including new participants: Would you volunteer for clinical studies?
Do you require transportation? Or something like that. I am curious to see if all these discussions are motivating PWPs to participate in clinical trials. I just enrolled in one! Girija Quote:
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"Thanks for this!" says: | jeanb (03-07-2009) |
03-07-2009, 06:55 PM | #3 | ||
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Member
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Some years ago, we funded a survey to better understand this issue since we frequently were told that patient recruitment was a challenge...the two most compelling inputs for patients who participated (according to our survey) were:
My physician recommended it to me. I spoke with someone else who had a positive experience in clinical trials. Both of these responses offer some great ideas and illuminate some challenges...but, thought folks would like to know about the survey responses. Debi |
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"Thanks for this!" says: | girija (03-08-2009) |
03-07-2009, 07:36 PM | #4 | |||
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Senior Member
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I would argue that those top responses to the MJFF survey indicate that in order to take part in a trial, PD patients need outside support for their choice, whether it be from their doctor or from the community.
Just thinking out loud here; my contention is that with the right motivation and support, clinical trials participation would increase. How do we promote the most effective motivation; provide the proper and best support? It's a good conversation.
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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03-09-2009, 04:29 PM | #5 | ||
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Yappiest Elder Member
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bump.......
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