My name is Kelly I have arnold chiari malformation for 12yrs. I had the decompression surgery may of 98. I was recently was told i might have to have the surgery again. I'm suffering again with all the headaches, choking, balance, pain etc. Has anyone had the night chills with this?

yes yes and yes to all of your symptoms

Very new to all of this. My daughter, 8, just had chiari decompression surgery with CI laminectomy and duraplasty. Her only symptom was chronic neck pain. No evidence of any spinal damage or syrinx/syringomyelia. I chose to do the surgery to stop this from happening and hopefully fix her pain. I have read, the fewer the symptoms, the more successful the surgery. This is NOT something my neurosurgeon said, and I'm not really sure where I read it. Anyone heard this before? I am SO sorry for those of you that have had "unsuccessful" operations/return of symptoms. I pray for you all and ask that you all pray for my little girl.

I'm 3 years post decompression and shunt surgery. All my symptoms are back and more. I get the feeling you've given up. Is there no point in continuing to try to get help? No meds work, just make me feel worse. This isn't living. I think of all, the nausea is the worst. Unrelenting. I keep living for those occasional "good" days.