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10-13-2010, 07:10 PM | #1 | ||
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I was on vicodin and muscle relaxers for the last 2 yrs because of burning/sharp pains in my neck and shoulder blades. Some days I can't even move my head. So my FMD finally orders an MRI and it shows degenerative disk disease, 3 herniated disks impinging on the thecal sac, and a 2 cm syrinx. The pain has gotten so bad, I sit and cry most days. Calling off work so often, I am surprised I haven't been fired yet. So I go to a neurosurgeon because now I have trouble walking, and she tells me I am not a candidate for surgery. The Syrinx is not causing the pain, numbness, headaches, nausea and slurred speech. So I go to another doctor who prescribes therapy, injections in my neck, and neurontin. No one will give me anything for pain and I feel like a complete waste to my husband and 3 children. I live in PA and can't seem to find any doctors who understand this condition. Everyone I talk to medically make me feel like it is just degenerative pain. No one has even said Syringomyelia. Do doctors just not know what it is or am I making it worse than it is. Help please, before I crawl out of my skin....
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10-24-2010, 11:37 PM | #2 | ||
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Do you also have a chiari malformation? I believe it is rather unusual to have a syrinx develop without other spinal disorder.
I am so sorry you are in pain and hope you get the answers you need soon. |
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10-28-2010, 11:15 AM | #3 | ||
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No chiari. I think it is trama induced from a car accident in 92', and now it has become big enough to cause problems. I have to go for a cervical steroid injection in a week for degenerative disk impinging on the spinal cord and I am so scared. I hope it doesn't affect the syrinx. I definately like walking still, even if it slow and difficult. For 36, I feel 90.... So not fair, but thank you for your response. It helps when you find someone who makes you feel like you matter. |
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11-03-2010, 08:43 PM | #4 | ||
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Hi my name is Sharon and I have Syringomyelia and AC. My Syrinx was from C2 to C7. I had my surgery in 92 only for my problems to become worse. It was not until 2005 that I found a doctor (pain) that finally got me on the correct medication. I'm never pain free but, it helps and makes it bearable. If you'd like to chat let me know and I can let you no what med's work for me. Sharon |
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11-04-2010, 10:34 PM | #5 | ||
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Hi! I have a syrinx in my neck from C2 to C7/T1. I also have cervical stenosis at C5/C6 and milder degenerative changes throughout the neck. I suspect mine is from an MVA in 2003 that damaged the right side of my neck/right shoulder/right arm. My syrinx is monitored for growth but likely doesn't cause my symptoms as my symptoms can be traced to the C5/C6 dermatome. I had the cortisone shots done a few years ago at C5/C6 and the shots dramatically cut down the pain. Definitely give the shots a try! If I hadn't, I would have had surgery to fuse the neck several years ago.
I understand feeling 90 when you're in your mid 30's. My 35th b-day was 18 months post 2003 MVA and it looked very bleak. I was in a ton of pain, losing the use of right arm, etc. Getting into the right doctors and figuring out what meds/treatment works for you is key. For me, it was those cortisone shots followed by stumbling onto a good acupuncturist but everybody is different. |
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11-08-2010, 04:59 PM | #6 | ||
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03-01-2012, 03:24 PM | #7 | ||
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03-12-2012, 03:57 AM | #8 | ||
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Just be careful about the chiropractor I know you are doing anything to find relief but it can actually mess things up worse even if they or you do not realize it.
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03-12-2012, 07:08 PM | #9 | ||
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after about maybe 6 - 10 visits later the Chiro and I decided it may be wiser to stop not knowing what will happen if he POPPED the wrong area. we went to massages in the neck for a little while it felt good but no help. we finally parted ways. but if it weren't for him i may still not know what is going on.
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03-18-2013, 06:17 PM | #10 | |||
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and this was my first post... |
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