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02-17-2007, 05:32 PM | #1 | ||
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Hi, my name is Jo Anne. I had surgery January 18, 2007 in Miami. I had a cranectomy with supocciptal and C1 Lami with graft. I had been fighting major headaches for 6-8 months and getting worse. My neck were hurt and burn. I had difficulty swallowing, and off balance. I had three opinions before me and my family decided that surgery would be best. I've known that I have had Arnolds Chiari since 2000, with a MRI. I had a cyst-tonsil around 10mm and had syringmelia in the thoracic area. This was making Cerebral Spinal Fluid hard to flow properly. Surgery was on a Thursday and I don't remember anything until Monday. Yes, I was in pain! Tuesday they took out my shunt drain in the lumbar area. Weds. I started to get tremdious pressure in my head when I stood up, M.D. states that I have a cerebral spinal leak, and that they would have to do a blood patch. On friday morning they took me down to o.r. had me lye on my belly, which hurt, they did a lumbar puncture, and add my blood to the leakage area. I finally went home Friday evening. I still couldn't balance myself without help. Physical Therapy gave me a walker. Now I'm 4 weeks postop, I'm finally getting outpatient therapy for dizziness and strength training. Has anyone else had this problem after surgery? How long does it last? I want to back to a normal life. Thanks for listening, JO Anne
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02-21-2007, 10:16 AM | #2 | |||
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Hello Jo Anne and welcome to Neurotalk tho sorry for the circumstances that bring you here.
I hope someone with more knowledge of this than I will be around to help you soon
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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05-19-2007, 09:11 PM | #3 | ||
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I NEED HELP MY DAY IS ALMOST HERE FOR THE ACM1 SUGERY AND I DON'T KNOW WHAT TO EXPECT. I fell like i spend all my time on the computer trying to find photos so i know what to look for but it is not helping please help tell me what goes on (if you can)thanks!!!
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05-20-2007, 01:22 PM | #4 | |||
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Joanne I do hope you are having surgery by this Dr. He is the Chiari expert in Florida .
Barth Green, MD. http://neurosurgery.med.miami.edu/x66.xml?id=34983 Professor and Chairman Department of Neurosurgery University of Miami Miami, Florida The Miami Project to Cure Paralysis http://www.miamiproject.miami.edu --------------------------------------------------------------------------------
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Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile Last edited by razzle51; 05-20-2007 at 01:23 PM. Reason: add |
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05-16-2013, 09:29 AM | #5 | ||
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Quote:
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10-22-2009, 10:54 PM | #6 | ||
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Quote:
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04-21-2010, 01:54 PM | #7 | ||
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hi I'm 16 and had surgery on aug. 17. I'm in a great deal of pain constatly now and I'm about 60-70% worse then before surgery. If u want to no more let me no
Molly |
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04-22-2010, 08:24 AM | #8 | |||
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Member
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IF YOU CANNOT LIVE At ALL WITH THE SYMPTOMS<< DO NOT GET IT DONE<< IT MIGHT JUST BE THE START OF MORE NIGHTMARES
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04-22-2012, 01:38 PM | #9 | ||
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"Thanks for this!" says: | mdr1216 (04-23-2012) |
03-06-2014, 11:57 PM | #10 | ||
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I had decompression surgery with a duraplasty in February 2012, since then there have been days when i had headaches and chiari pain but nothing too bad or unexpected. Until lately.
I have been having intense headaches almost every night, looking down is extremely painful and washing my hair sets up the pain for the night. my fingers have been tingling occasionally. also, I'm not sure if this is chiari related but i have been having hiccups almost every day for the past couple weeks. I would love to avoid the doctor but this has me a little worried. Anyone had these symptoms post decompression? |
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