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02-17-2007, 05:32 PM | #1 | ||
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Hi, my name is Jo Anne. I had surgery January 18, 2007 in Miami. I had a cranectomy with supocciptal and C1 Lami with graft. I had been fighting major headaches for 6-8 months and getting worse. My neck were hurt and burn. I had difficulty swallowing, and off balance. I had three opinions before me and my family decided that surgery would be best. I've known that I have had Arnolds Chiari since 2000, with a MRI. I had a cyst-tonsil around 10mm and had syringmelia in the thoracic area. This was making Cerebral Spinal Fluid hard to flow properly. Surgery was on a Thursday and I don't remember anything until Monday. Yes, I was in pain! Tuesday they took out my shunt drain in the lumbar area. Weds. I started to get tremdious pressure in my head when I stood up, M.D. states that I have a cerebral spinal leak, and that they would have to do a blood patch. On friday morning they took me down to o.r. had me lye on my belly, which hurt, they did a lumbar puncture, and add my blood to the leakage area. I finally went home Friday evening. I still couldn't balance myself without help. Physical Therapy gave me a walker. Now I'm 4 weeks postop, I'm finally getting outpatient therapy for dizziness and strength training. Has anyone else had this problem after surgery? How long does it last? I want to back to a normal life. Thanks for listening, JO Anne
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02-21-2007, 10:16 AM | #2 | |||
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Administrator
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Hello Jo Anne and welcome to Neurotalk tho sorry for the circumstances that bring you here.
I hope someone with more knowledge of this than I will be around to help you soon
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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05-19-2007, 09:11 PM | #3 | ||
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I NEED HELP MY DAY IS ALMOST HERE FOR THE ACM1 SUGERY AND I DON'T KNOW WHAT TO EXPECT. I fell like i spend all my time on the computer trying to find photos so i know what to look for but it is not helping please help tell me what goes on (if you can)thanks!!!
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05-20-2007, 01:22 PM | #4 | |||
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Joanne I do hope you are having surgery by this Dr. He is the Chiari expert in Florida .
Barth Green, MD. http://neurosurgery.med.miami.edu/x66.xml?id=34983 Professor and Chairman Department of Neurosurgery University of Miami Miami, Florida The Miami Project to Cure Paralysis http://www.miamiproject.miami.edu --------------------------------------------------------------------------------
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Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile Last edited by razzle51; 05-20-2007 at 01:23 PM. Reason: add |
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10-22-2009, 10:54 PM | #5 | ||
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Quote:
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04-21-2010, 01:54 PM | #6 | ||
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hi I'm 16 and had surgery on aug. 17. I'm in a great deal of pain constatly now and I'm about 60-70% worse then before surgery. If u want to no more let me no
Molly |
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04-22-2010, 08:24 AM | #7 | |||
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IF YOU CANNOT LIVE At ALL WITH THE SYMPTOMS<< DO NOT GET IT DONE<< IT MIGHT JUST BE THE START OF MORE NIGHTMARES
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09-20-2010, 09:51 PM | #8 | ||
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New Member
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I had a migraine for a year then my arm went numb. I had shoulder surgery to repair it and it got worse. I had The craniotomy and removal of three vertebrae backs. I then developed a tear in the grapht and two forms of meningitis. I ended up having a second emergency surgery and have been battling all of the symptoms since then some worse then before. I have developed a roaming neuropathy does this sound normal
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10-01-2010, 09:46 AM | #9 | ||
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New Member
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Does your pain change from day to day. I mean where it actualy is cause most of the time it's my left arm and leg but sometimes it's my back. And my neck never stops hurting
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04-22-2012, 01:38 PM | #10 | ||
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"Thanks for this!" says: | mdr1216 (04-23-2012) |
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