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Old 01-08-2012, 06:00 PM #1
sara052420 sara052420 is offline
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Default After Chiari Surgery.. Please help!

My boyfriend has Chiari Type 1 Malformation. He already had the surgery for it on November 2nd, 2010. The recovery process has been VERY rough! From punching his doctor when he woke up from surgery bc of anger from coming off of the anesthesia to walking a few hours after surgery (when he wasn't even supposed to be moving bc he was supposed to be sedated) to bleeding at the incision site.. there's been more but it would be too much to even type! But now that he's healing up nicely & not having any pain since his surgery, at the incision site where it is scarring up it is kind of going in a lot.. and by "going in" i mean it feels like someone dug a hole in his head & when he looks up it looks like fat rolls on his head (Which he's very skinny so that wouldn't be the case). I'm just wondering if its because of the removing of the skull?? I don't want 'a go back if its something that's normal. So if anyone has had experience with this, please let me know! Hopefully I'm just overreacting! Oh and sorry if my wording isn't the best. I didn't know how to describe it other than the way I just did. Thanks for any & all help!
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Old 01-09-2012, 07:39 AM #2
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has he been back for his 6 week check . if he hasnt he needs too , if he has then yes he needs to call the dr. asap.
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Old 01-09-2012, 01:21 PM #3
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ya he has been back for his 6 week.. doctor looked at his MRIs, but not the actual incision site. he said everything was good & discharged him to go back to work. im guessing its just where they took out part of his skull though.. because the doctor DID say that it was the worse case of Chiari he's ever seen & hes been doing it for 20+ years! He had a headache last night so i'm getting a little worried. what does that mean if you have a headache AFTER the surgery? that the brain is sloping back down? there is so little information about Chiari out there & i dont understand doctor talk that well! I would love to hear other people's story with Chiari and recovery and all that. Thanks for the advice though!
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Old 01-10-2012, 09:08 PM #4
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I had surgery back in June 2011 and I myself have a very deep indention in the back of my head from where they removed my skull !
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Old 01-11-2012, 01:21 PM #5
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oh okay! thats what i thought it might be.. just from the surgery. would you happen to know what it means if you get a headache after surgery? does that mean things are going back to the way they were before surgery?
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Old 01-11-2012, 02:41 PM #6
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Quote:
Originally Posted by sara052420 View Post
oh okay! thats what i thought it might be.. just from the surgery. would you happen to know what it means if you get a headache after surgery? does that mean things are going back to the way they were before surgery?
Thats a great question. One I would like answered myself. I had my surgery in June and just started having reocurring headaches 1 week ago. This is very scary and discouraging!!! Put a call into my Neuro this morning hopefully get some answers soon. After my surgery I had spinal fluid leakage and had a horrible headache for 1 week after I was in the hospital for that week. As far as this headache Im still wondering. Lets PRAY we are not going back to the way things were before for the both of us..
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Old 01-11-2012, 09:28 PM #7
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let me know what your doctor says about them! i am very curious & if my boyfriend has another headache (hes only had one so far since surgery almost 3 months ago) i will call his doctor!
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Old 01-12-2012, 06:11 PM #8
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I will let you know. Little discouraged cant get into see him till Feb. will let you know as soon as I can .
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Old 01-12-2012, 08:35 PM #9
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My 6 year old son had decompression surgery Dec 28th 2011. We just got his stitches removed today. He has done fairly well so far. My only concern right now is that he can not straighten his head. His chin is downward and his head is tilted to the left. It is very noticeable, and makes it hard for him to balance. Dr said that this is not due to the surgery. He was able to move fine before. We go back in 3 weeks.....Why is it like this?
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Old 01-12-2012, 08:54 PM #10
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the wonderful thing about neuro docs.. they seem to ALWAYS be booked up! (Sarcasm ofcourse) if i hear anything also ill post it on here too! i wish there was more info on the after surgery part of chiari!
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