I think I may have struck gold, FINALLY!! I met with a new neurologist last week and the knowledge that came out of his mouth, regarding Chiari, in the first 5 minutes of our appointment, was more than any other neuro (or ANY doc for that matter) has ever known. I'm always the one who has to inform them about Chiari!! BUt this neuro knew that spinal taps are a no-no which chiari which SHOCKED me!!! He is suspecting MS (which I've been told all of my life) because of the other precursors that I have. He ordered another brain mri and cervical mri (even though I just had one in Sept) and I had them done last week. I really don't think I have MS. I think I would've known by now. I will agree that a lot of my symptoms point towards that, but I know that a lot of the symptoms can be chiari related as well. The new neuro also reported that in the file from my previous doc,that he noticed that I had a positive tilt table test which he says is in NO way normal and that could be causing my low blood pressure issues. He says "Angie you aren't crazy, and there is definitely something going on. We just need to get to the bottom of it." How refreshing! We'll see.. I'm happy to have just found a doc with some knowledge and understanding. He also says that I need a PCP that can handle my different diagnosis. ONe that has an understanding of them and can refer me to the specialists that I need. So he referred me to someone he recommends and I meet with them on Friday. I do feel some relief with the hope of being on the right track. But my symptoms have not let up at all. They are driving me nuts. I am still having MAJOR palps ALL DAY LONG and it's been over 3 weeks now. I'm actually on my way to get a holter monitor on now. Ugh.. hate these things. But ya gotta do what ya gotta do!

Who is your doctor? I feel the same way you do...I just want a doctor that understands whats going on with me.