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05-25-2012, 07:22 AM | #1 | |||
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Junior Member
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I can finally say that I have been given a confirmed diagnosis of Chiari Malformation! The NS said that it is a mild case however. I am plagued still 24/7 with various symptoms that can be down right horrid. I finally got to see a specialist at the Mayfield Clinic in Cincinnati, OH. They have confirmed the dx but, again another doctor and again, a call for more test. I drove 2 1/2 hours for this appointment to be told that I need to have a complete MRI with and without contrast and referred to another doctor in the practice to investigate the cyst in the pineal gland. I am so tired and so need some answers!
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03-10-2012, 08:21 PM | #2 | |||
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Junior Member
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Ginnie and Mike,
Thanks for the replies. I get the chance to check my messages often throughout the day but a live chat room would not work for me. My journey began a very long time ago. Migraines as a little girl. I have had to lumbar surgeries with the second on being a fusion way back in '99, I have had Carol tunnel surgery on both hands (left one twice), left ulnar tunnel release, left shoulder repair, gastric bipass surgery (I lost 126 pound) but because of the depression and pain I have gain half of that back. I have had gall bladder, hysterectomy, two kids (4 angels in heaven) I have mixed sleep apnea, problems with fast and irregular heart rate, the list goes on and on. I just need to get some relief. I did see a new doctor this last week who did order a new MRI, when I was treated for a possible stroke in '08 I had MRI that showed a synix and a cyst in the pineal gland. I have started tracking down all of my records so that I can compile thing and try to map it out so that I am better informed. My friend has been diagnosed with Chair I and that is who is helping me with this. Our MRI are identical and add the syrinx to mine and the symptoms that have me side lined most days. I still manage to home school and do daycare but I am pretty wiped out but the weekend. |
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03-10-2012, 08:25 PM | #3 | ||
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Junior Member
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Quote:
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"Thanks for this!" says: | pjdk2012 (03-13-2012) |
03-13-2012, 06:34 AM | #4 | |||
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Junior Member
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Well today I get to go get a new MRI of the head and cervical spine. I wish the doctor would have ordered a Thoracic area as well. My husband is weary of the money we are putting out for the doctors and for years now not really getting anywhere. I hope they get some good pictures of me that can help shed some light on it all. I appreciate the replies and look forward to getting to know my new online buddies
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03-12-2012, 03:28 AM | #5 | ||
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Junior Member
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Lost Hi, I am here to help if I can let me know what is going on and maybe I can help or at least listen. I have chiari, EDS (Ehlers Danlos Syndrome), CCI (Cranio-cervical instability), POTS (Postural Orthostatic Tachycardia Sydrome) because of the first 2, Scoliosis, possible TC (tethered Cord) and herniated discs in my back and every weird neurological symptom known to man pretty much.
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"Thanks for this!" says: | pjdk2012 (03-13-2012) |
03-12-2012, 12:59 PM | #6 | ||
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Junior Member
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Im new here, I cant figure this out? If you do will u let me know? thanks good day
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03-13-2012, 06:35 AM | #7 | |||
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Junior Member
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03-13-2012, 07:56 AM | #8 | ||
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Elder
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How did the test go. Don't be afraid to ask your doctor to do another test. Hope there is some resolution for what you are going through. We are here for you and so am I. ginnie
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03-13-2012, 01:25 PM | #9 | |||
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Junior Member
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Once I got there I was okay but I totally blank out on how to get where I was going and had to call the place twice to get back to where I was suppose to be. I did not like that feeling at all!
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"Thanks for this!" says: | ginnie (03-13-2012) |
03-15-2012, 11:07 AM | #10 | |||
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Junior Member
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How is the week going for everyone? I am anxiously awaiting a phone call from the doctor's office. He said I could call for the results in a couple days after the MRI. He had told me that there were to many patients and not enough staff to call everyone so they do not call but will respond if called. So once again I am in a wait and see scenario. I hate that.
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