My husband was just diagnosed with SM and we are waiting for a cervical MRI to rule out/confirm CM as well. He was diagnosed by a doctor at the Spine Center in Omaha. They referred us to a local neurosurgeon for after we get that cervical MRI done. However, neither one of us is comfortable with the neurosurgeon we were recommended. DH saw him for a consult in January, when the only information available was a lumbar MRI (his SM is from t2-t11) that showed a spinal lipoma at l2-l3. The doctor told my husband his pain (numbness and tingling/burning that is severe in the upper thigh area) was probably muscular and to try physical therapy.

Does anyone know of any neurosurgeons in the Omaha area that have experience with SM/CM? Or in Iowa? We have cheap transportation available to Des Moines and Iowa City, and have family in Sioux City, so any of those places (or close to them) would be great.

Hello I am in sioux city . There are several drs in Omaha and a chiari expert in Iowa city , Dr Arnold Menenez. My dr is Ralph Reeder in dakota dunes SD just real close to sioux city..There is a Dr. Throell in Omaha who is fantasic ..shoot me a email , there will be a walk in sept in Lincoln. **.. put chiari in subject line... Roz

I also am looking for a neurosurgeon in Philadelphia, right now I am at Jeff but was wondering if anyone else had any other suggestions/ I was diagnosed with Chiari malformation 1 & syringomyelia and was told I needed to have surgery as soon as I could schedule