Hi all,
new here to neurotalk. Im looking for some help from people who know what's going on hopefully better than me.
so, ten years ago when I was 14 I had a chiari decompression complete with c1 and c2 being removed. After surgery it took 2 months for the symptoms to come back. At the time, the research I found was simply an answer of "too bad soo sad" nothing left to do. So after getting about the same response from my neuro, that at the time there was no alternatives except wasting away on painkiller, I decided id just live with it.
living with it is hard but I think we all know we are capable of getting past the joys of discomfort from chiari when there is no other choice. Comes with being a pre zipperhead or a zipperhead.

Here's where things are changing, where I can't seem to ignore it. Over the last two years, a few things have started happening.
1.) My insomnia is going nutts. Even when my headaches are so bad im puking and curled in a ball, I just can't sleep.
2.) My swallowing issue has shifted... oddly. It almost feels like a bone is out of place in the front of my throat preventing me from swallowing. Weird I know. I can even pop it in and out of place. Research says there is a bone there, the hyroid bone, over the thyroid, but it shouldn't ever "pop"
3) **** post chiari people, id love your input here. If I lay or move my head/neck/shoulders wrong, I can literally feel my presure in my head rise. So badly I have passed out! Anyone else?
4.) General clumsiness/perception being screwy, extreme debilitating headaches/neck aches, you name it chiari is back and badder than ever.
HELP!!!!!