NeuroTalk Support Groups - I need a Dr. in the MidWest!!!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Arnold Chiari Malformation & Syringomyelia (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/)

- - I need a Dr. in the MidWest!!! (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/176067-dr-midwest.html)

top chiari specialist in Iowa dr Menenz

and dr Capocelli in Little Rock , arkansas

Quote:

Originally Posted by llhoover (Post 912319)

I need some help with finding a doctor in the MidWest region that specializes in Chiari...I was dx with a 11mm Chiari Malformation in June...My nuero dr that I have seen for migraines for ten yrs left 1 month before this so I am left with nobody...I went to a new Neuro dr that was a horrible, all she wanted to tell me was that I didn't have MS (thankfully) and give me medicine to help me sleep...she blamed all my symptoms on the possibility of my Topomax that I take for the migraines...I then went to a NS who was a little better but he said that after doing 2 more MRI's that I didn't have a syrinx and I would never develop one and to go on with life and not worry about anything!!!!! Are you kidding me!!! When I was dx with this I was so relieved (which sounds weird) to finally have some answers to how I have been feeling...I almost felt like a hypochondriac b/c I was complaining about soooo many things about how I feel...If anyone knows of a good doctor that specializes in this I really need to see one...I'm tires of the ones who look at you like it's no big deal!!!

i know a Dr James Stone out of chicago from UIC giva him a call if you can find him

I highly recommend Columbia University Medical Center. It is a teaching facility, and does research, trials etc. I was with them for about 11 years, and the treatment I received was wonderful. I have auto immune conditions, and Mayo clinic in Mn, sent me there for a trial study. They also have one of the finest medical research libraries around. ginnie:hug::hug:

2 chiari specialist dr Capocelli in Little rock, Arkansas and dr Menenez in Iowa city Iowa , not any really in MO.

Quote:

Originally Posted by bran_marie6 (Post 1021096)

Did you ever find a Chiari Specialist in the Midwest? I was just currently diagnosed with Chiari, and I'm looking for a specialist as well. I have a neurosurgeon in Springfield, MO, but i want someone who specializes in Chiari.

I know this is a really late reply, but I also see neurologist/surgeon in Springfield & I feel at such a loss. I'm always in such pain & was wondering if you have had any luck with finding anyone new?

Quote:

Originally Posted by llhoover (Post 912319)

I just recently moved out of the metro KC area where I was told by neuro after Neuro I was either a drug seeker, my herniation didn't warrant surgery, or they didn't specialize in it. I did find a clinic in Aurora Colorado that specializes only in Arnold Chiari but never followed my gut. If that is too far you might want to consider checking into via internet and phone research the Diamond Headache Clinic in the Chicago area.