My daughter was diagnosed after a CT for a concussion. We followed up with an MRI and say a nero surgeon yesterday. He said that he no longer lets Chiari Malformations go due to 5 children in his practice that are now paralyzed after being watched and becoming injured by whiplash... such as the last was a boy in a jumpie house. My daughter has NO symptoms. I too found out I have a malformation after going in for a CT for headaches. I haven't had an MRI yet.
Anyone else know of or can share their opinion on operating to avoid a tragedy?
Thank you!

you need another opinion asap .... dont do anything until you do... Dr Oro in Colorado is excellant with Chiari . Have your family dr refer you there....

http://chiaricare.com/

Welcome to Neuro Talk. I am sorry you and your daughter have to go through all this. Please seek a second and even third opinion. If you cannot find a good physician you are really trusting of right now, post your location, and someone will come by to tell you about a physician in your area. This is a very good site for information. I do wish you both all the best. ginnie