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Old 03-06-2013, 08:54 PM #1
Bret Borth Bret Borth is offline
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Bret Borth Bret Borth is offline
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Default Can chiari malformation come and go?

I am new to this forum, and I will try to be brief in my dilema. Endured a whiplash concussion 12 years ago. Prior to this I was running marathons and in great shape (37 at the time). After the incident, I lapsed into bouts of dizziness, heavy fatigue, and a disassociation with my surroundings. After 5 months of normal blood work, I had an MRI that noted I had a chiari 1 malformation. The neuro at the time dismissed this which I thought to be odd. My symtpoms abated after 7 months. However, since that incident, whenever I come down with a fever, I kick back into the symptoms. I have been in this same period of symptoms, but now worse then ever. A subsequent MRI 2 years ago did not show anything abnormal according to the radiologist. Obviously something is wrong for me to lapse into the typical chiari symptoms each time I get a fever. Not sure what to make of this, all blood work is fine, and hormones, etc. Just curious if even a small herniation of sorts could be at the root of all this. I am 49 now, and really struggling with this. Any comments?
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Old 03-07-2013, 04:42 PM #2
ChiariGirl84 ChiariGirl84 is offline
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ChiariGirl84 ChiariGirl84 is offline
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I had the CHIARI surgery last year, and in my case some aspects of the Chiari are completely gone while others never went away. The symptoms that remained tend to flare up when I am sick or when the weather changes or sometimes for no reason at all. The surgery isn't a panacea, despite what some neurosurgeons will tell you, but you may want to have an MRI to be sure that your cerebellum hasn't herniated again, it can happen after an accident or with a connective tissue disease. Also, a syrynx could be possible, I would recommend seeing your Neuro as soon as possible
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Best wishes!
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Old 03-18-2013, 04:20 PM #3
Bret Borth Bret Borth is offline
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Default chiari versed neuro?

Quote:
Originally Posted by ChiariGirl84 View Post
I had the CHIARI surgery last year, and in my case some aspects of the Chiari are completely gone while others never went away. The symptoms that remained tend to flare up when I am sick or when the weather changes or sometimes for no reason at all. The surgery isn't a panacea, despite what some neurosurgeons will tell you, but you may want to have an MRI to be sure that your cerebellum hasn't herniated again, it can happen after an accident or with a connective tissue disease. Also, a syrynx could be possible, I would recommend seeing your Neuro as soon as possible
.

Best wishes!
From what I have read, many radiologists reading the scan don't know what to look for in regard to chiari. My guess is that it would be best to find a neuro versed in chiari, and not go to just anyone? This intrigues me. I still can't understand how it can be there on one scan, but not another.
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