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05-21-2013, 04:03 PM | #1 | ||
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Ok Im going to try to make this short as possible.
When I was 16 now 26 I was diagnosed with chiari sygnomagilia I had decompression done but my this time i had loss the sense of touch in my left arm. But my headaches have stopped. 10yrs later my right arm is going. I saw the neurologist at the Chiari Institute in NY and they told me my options are a shut or a neck fusion as my chiri is caused by a deformity at the top of my spinal cord. I want to hear from people who have had the fusion and/or shut and your experience, also do you regret getting any further surgery, I'm a fighter and i hide my disability well and people just have no idea what I have to do to function as well as I do(most the touch is gone from the left side of my body, as well as my equilibrium is totally gone, and the level of weakness I deal with), to me its not even a struggle anymore its just me doing what I need to so I can live as full of a life as possible. Thank, you all. Stay strong. |
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