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07-27-2013, 03:13 PM | #1 | ||
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Hello, everybody! I am new to all of this so please bare with me!
My fiance is 35 years old with no history of health issues until March 2012 when he woke up with double vision, that is when all of this confusion started. We are at a loss right now so any help will be greatly appreciated. Here's a little timeline (note no diabetes, no HBP, 20/20 vision, no health issues at all until now) March 2012: Woke up one morning with double vision Mild loss of balance Severe earache Mild rash on scalp Numbness in one arm/hand April 2012: Brain MRI with contrast (clear) Visit to eye specialist (diagnosed with right 6th nerve palsy) ^scheduled a visit with a neurologist Numbness increases in arm and hand Ear pain continues even with medication (Amox.) July 2012: Loss of balance starts Double vision continues Hard to focus and concentrate Starts complaining of back and neck pain/pressure Ear pain continues (inner and back of ear/right ear only) **** Winter 2012: Double vision goes away overnight Regains balance completely Numbness continues Made the mistake of cancelling our appt. with the neurologist because the symptoms went away March (again) 2013 - first day of Spring: SYMPTOMS COME BACK WITH A VENGEANCE! Mows for the first time, 5 min. in he comes in stumbling double vision returns overnight Wakes up with severe pain in the back of his head Severe headaches start Starts hiccuping on a daily basis (never before?) May 2013: Double vision continues Balance worsens by the day Headaches are 24/7 now Family doctor keeps telling us it's allergies ^prescribed vertigo pills, Amox., Prednisone and an Anti-inflammatory ^Medication do not help, at all Starts complaining about a "crawling" feeling on his scalp June 2013: Schedule appt. with neurologist No longer able to go into work (liability due to lack of balance) double vision continues constantly complaining of headaches and pressure in the back of the skull starts complaining of mid-back pain (can't bend over) Visit ENT: finds nothing, 100% on hearing test Ear pain continues (right side only) July 2013: Neurologist looks at MRI from last year for 15 seconds, says he doesn't see anything wrong. Order MRI I beg for C-spine and T-spine MRI, he agrees Tells us we need a psych test due to mild memory loss (stress and lack of sleep, not memory loss) Tells us we need to see a physical therapist for balance issues (i don't follow thru since we don't know what's wrong yet) * So this is where we're at. I am currently going over all 3 MRI's from this week. Brain, C-spine and T-spine. Should I have these results sent to a Chiari Malformation specialist? We live in southern Ohio so we're not far from the Mayfield Chiari Malformation Clinic in Cincinnati. Does this sound like CM? The doctor also wants to rule out MS, but he feels in his heart that this isn't MS. Is there anyone on this site who could look over his MRI results and tell me if anything stands out? I only ask because the Dr. can't see us until mid September. He is out of work, we have no insurance and we're desperate for answers. |
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08-02-2013, 11:47 AM | #2 | |||
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Senior Member
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you don't have a picture of your brain and brain stem so don't know if he has chiari or not
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08-10-2013, 02:45 AM | #3 | |||
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Senior Member
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Quote:
hard to tell
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Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile |
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06-28-2020, 01:50 AM | #4 | ||
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If you haven't by now gotten good answers you could check out the online pages on Chiari and Syrinx. They also have several pages with MRI images you can use to compare, I have looked at your films but don't want to make judgments as I am only familiar with my own issues of same.
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10-28-2021, 01:10 PM | #5 | ||
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Newly Joined
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Oh no ifeel for you im new here i have chiari 1 type malformation. I have ghorrible headaches everyday. Apparently this is a known birth defect took mine til I was 33 to find out what n why I've had heavies all my life a million dr appointments in Atlanta GA neurologist etc it never showed up .There are several different types of chiari malformation. I get headaches so bad til I vomit .I lose balance I get confused I even chose in my sleep The canal is to slim and part of the brain is pushing on it causing what is known as " pressure headaches"
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"Thanks for this!" says: | bizi (10-28-2021) |
10-29-2021, 09:25 AM | #6 | ||
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Grand Magnate
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Welcome Diamondqueen429.
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10-29-2021, 09:53 AM | #7 | |||
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Senior Member
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Welcome, Diamondqueen429!
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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