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Old 03-01-2014, 09:00 AM #1
mimiRN mimiRN is offline
Junior Member
 
Join Date: Feb 2014
Posts: 20
10 yr Member
mimiRN mimiRN is offline
Junior Member
 
Join Date: Feb 2014
Posts: 20
10 yr Member
Default Just diagnosed with Chiari type I

Hi I am looking for any information or suggestions regarding chiari type I.

Here's a little if my history:
Started having slight numbness/sensory loss in my rt ring finger (attributed to carpal tunnel?). Also have on off toe and foot numbness. Feelings of off balance, dizzy etc on occasional, and decreased sensory feelings like temperature in my hands and feet. Lastly, noticed slight tongue numbness near the tip. No history of headaches, other than occasionally minor more hormonal related.

I have been worked up by a local neuro. He first mentioned carpal tunnel of my right hand, and also briefly mentioned possible ms. I had blood work (all normal except low vitamin d level 22) and MRIs of brain, c & t spine.

I had my follow up appt yesterday. He informed me of the chiari malformation. My report states: borderline right cerebellar tonsil. Extends 5mm, no significant crowding.

He was not very informative. He said it was rare after I asked if its common. He said there is no treatment except surgery which I will try to avoid at all costs. However, how do you treat the symptoms? I feel like I'm at a loss and don't know what to do to help myself get better. He didn't state any limitations either??
I'm considering a second opinion so that I can get more education and to answer my many questions.

Does anyone one know is it common to only have one tonsil involved? Also, how do you treat your symptoms?

Thank you
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