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Support Group in South Africa?

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Old 03-06-2014, 05:54 AM #1
sam2012 sam2012 is offline
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Location: Glernferness, Midrand, Gauteng, South Africa
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Smile Support Group in South Africa?
Hi special Arnold Chiari Members.

I live in South Africa.

Do you know of anyone living in South Africa as well?

Thank You,

Take care

Samantha
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Old 04-17-2014, 09:50 AM #2
nicci83 nicci83 is offline
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Location: Mokopane, South Africa
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Smirk South Africa
Hi

I live in South Africa, Limpopo have chiari malformation.
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Old 04-24-2014, 10:34 AM #3
sam2012 sam2012 is offline
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Join Date: Feb 2014
Location: Glernferness, Midrand, Gauteng, South Africa
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sam2012 sam2012 is offline
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Smile Great to meet a chiari friend
Quote:
Originally Posted by nicci83 View Post
Hi

I live in South Africa, Limpopo have chiari malformation.
Hi

Great to hear from You Nicci

I too live in South Africa, Johannesburg.

How are You coping with Your ACM symptoms and condition?

Would love to hear more about you and what you have been through.

Have a great eve ahead.

Take care

Samantha
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Old 05-03-2014, 12:29 PM #4
nicci83 nicci83 is offline
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Location: Mokopane, South Africa
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Smile Sam
Hi.


Well I am doing ok. Just a problem getting medicine for these headaches. We are not so lucky as the people over seas.

Had the decompression, Dr. J. Steyn at Wilgers did the op. Help me all the way but last year said he has nothing more he can do for me.



Guess its just how it is.

Wow someone in SA with Chiari
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Old 05-22-2015, 05:17 AM #5
AngelNel AngelNel is offline
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Default
Hi,

So glad im not alone!

I was diagnosed 5 years ago, Type 1 with a 7.2mm protrusion.

I was on strong pain meds for a year but have been going strong without them for 4 years apart from over the counter pills. I have been suffering with bad headaches the last 2 months and its just not going away! I have made an appointment but can only see the doc in 2 months.

How have you been coping and have you gone for surgery?

Take Care,

Angelique - SA
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Old 05-26-2016, 07:21 AM #6
garyk007 garyk007 is offline
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Default Chiari
Hi Angelique

My wife has been diagnosed with a 5 to 6mm Chiari by DR Tuewen at the Olivedale.

Would love to get in touch.
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Old 06-06-2016, 09:01 AM #7
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Default
THERE IS ALSO A group on FB for sm in s africa which also has to do with chiari

Syringomyelia - South africans living with SM
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
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Old 08-09-2017, 11:32 AM #8
Gillie Gillie is offline
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Quote:
Originally Posted by sam2012 View Post
Hi special Arnold Chiari Members.

I live in South Africa.

Do you know of anyone living in South Africa as well?

Thank You,

Take care


Samantha

Hi Samantha.

I live in kzn. Also Chiari type 1. Have decided against surgery for now.
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Old 04-11-2018, 05:46 AM #9
LucilleBrand LucilleBrand is offline
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Hi I am from Vredendal (West Coast) and have Syringohydromyelia of the cervicothoracic junction, C7 through T2 - don't have any other info and don't know what it is. Specialist is not concerned, I need to go back after 3 months.
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Old 11-25-2018, 05:52 AM #10
Flerrie Flerrie is offline
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Smile Hi, are you still around on this group?
Hi, are you still around on this group?
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