advertisement
Reply
 
Thread Tools Display Modes
Old 04-26-2014, 05:47 PM #1
Bobomb92 Bobomb92 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 38
10 yr Member
Bobomb92 Bobomb92 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 38
10 yr Member
Default Repost from Gen Conditions and Rare

Hello I am a 21 year old male with an odd problem that has caused much distress. Ever since I hit puberty I have had a problem with my head and neck where I feel every time I try to think or produce thoughts or visualizations my head hurts and I am unable to. My neck strains and my muscles tighten uncontrollably like I am literally straining to think of something that shouldn't be complicated. I was also hit around this time with other stuff but I want to focus on this. This happens all day everyday for the past 8 years. I have chronic headaches and neck pain at the back of my neck where the skull meets the neck. My head feels tender to the touch. Most of the time I am in a "resting" state where I don't feel like im doing much thinking. My cognition is ok according to the neuropych testing. My head feels lightheaded daily, not where I feel dizzy but where my head feels like air Like there is nothing in between my skull.

I have had a neck surgery about three years ago which was a craniocervical fusion of the c1 to c2 with minor decompression. This was for a retroflexed odontoid and basiliar invagination. I did not have a chiari malformation. So I have rods in my neck but the symptom i'm talking about has not dissipated.

I was diagnosed with Postrual orthostatic Tachychardia syndrome because my blood pressure kept dropping when I stood up and heart rate increase. I am also chronically fatigued and have been seeing a chronic fatigue and POTS specialist.


I have had an mri/mrv/MRA/ct/xray/ and a Transcranial doppler (which came back abnormal for mild MCA stenosis but my doctor wasn't worried about it because he said the MRA was gold standard.

I know this a weird symptom and you may ask yourself how can someone say "they cant think" when they talk and type this. But picture it as a kind of brain fog that you feel is because the base of your skull is compressed. Ive always visualized it as the blood vessels at the base of my neck being compressed and every time I try to think my neck strains and head because its trying to force blood up to my brain to complete the "complex" thought. Though it seems this is not the case because of the scans of course. It just feels like severe brain fog mediated by my skull or biology basically.

Also take note that according to my Mri and the surgery my spinal cord is intact and impeccable.

Anyway if anyone has any thought on the matter please share. thank you
Bobomb92 is offline   Reply With QuoteReply With Quote

advertisement
Old 04-26-2014, 08:51 PM #2
Bobomb92 Bobomb92 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 38
10 yr Member
Bobomb92 Bobomb92 is offline
Junior Member
 
Join Date: Aug 2011
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by Bobomb92 View Post
Hello I am a 21 year old male with an odd problem that has caused much distress. Ever since I hit puberty I have had a problem with my head and neck where I feel every time I try to think or produce thoughts or visualizations my head hurts and I am unable to. My neck strains and my muscles tighten uncontrollably like I am literally straining to think of something that shouldn't be complicated. I was also hit around this time with other stuff but I want to focus on this. This happens all day everyday for the past 8 years. I have chronic headaches and neck pain at the back of my neck where the skull meets the neck. My head feels tender to the touch. Most of the time I am in a "resting" state where I don't feel like im doing much thinking. My cognition is ok according to the neuropych testing. My head feels lightheaded daily, not where I feel dizzy but where my head feels like air Like there is nothing in between my skull.

I have had a neck surgery about three years ago which was a craniocervical fusion of the c1 to c2 with minor decompression. This was for a retroflexed odontoid and basiliar invagination. I did not have a chiari malformation. So I have rods in my neck but the symptom i'm talking about has not dissipated.

I was diagnosed with Postrual orthostatic Tachychardia syndrome because my blood pressure kept dropping when I stood up and heart rate increase. I am also chronically fatigued and have been seeing a chronic fatigue and POTS specialist.


I have had an mri/mrv/MRA/ct/xray/ and a Transcranial doppler (which came back abnormal for mild MCA stenosis but my doctor wasn't worried about it because he said the MRA was gold standard.

I know this a weird symptom and you may ask yourself how can someone say "they cant think" when they talk and type this. But picture it as a kind of brain fog that you feel is because the base of your skull is compressed. Ive always visualized it as the blood vessels at the base of my neck being compressed and every time I try to think my neck strains and head because its trying to force blood up to my brain to complete the "complex" thought. Though it seems this is not the case because of the scans of course. It just feels like severe brain fog mediated by my skull or biology basically.

Also take note that according to my Mri and the surgery my spinal cord is intact and impeccable.

Anyway if anyone has any thought on the matter please share. thank you
According to my doctor my spinal cord looks good after the surgey is what I meant to say. But it still doesn't explain the brain fog.
Bobomb92 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Dr. Jho Surgery - repost from 3 yrs ago barryg Spinal Disorders & Back Pain 52 10-21-2019 12:16 PM
repost from 16 hour surgery below, Help please litezoner Spinal Disorders & Back Pain 18 08-27-2013 09:40 PM
repost - Brain cells from a rare New Zealand pig will be used in an attempt to regrow soccertese Parkinson's Disease 0 08-16-2013 08:09 AM
CNN weather map - (repost from old thread) astern Thoracic Outlet Syndrome 1 01-31-2011 11:25 AM
Genetic/Rare Conditions listings & links Jomar General Health Conditions & Rare Disorders 0 02-01-2007 12:57 PM


All times are GMT -5. The time now is 06:28 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.