Thank you!! I appreciate you letting me know and giving me advice. My friend was born and raised in China. She moved her after college. I asked her to look up some information about the herbs, considering it all says CHINESE HERBS work and I can't read Mandarin. After not only reading about it, she called one of the Neurologist there and he pretty much said, they have Medicines that do help make a huge difference but NOT HERBS!! I think it is sad, how people/companies try to take advantage of people. People who found out they are sick and looking for help! Really, what is this world coming to? Soo sooo sad!
Julie

I also have a syrinx in my lumbar spine, i understand what you are going through. mine was found by mistake, i had an avm and they found the syrinx doing an mri scan. if you have any question please feel free to asks!

My husband was diagnosed w/ SM in 07. His pain doc prescribes methadone and xaxax together - horrible and dangerous combo, in my opinion. I stumbled across the chinese herbal treatment website the day before I read your post. I am curious to know if you tried it. Please reply, thanks

I was diagnosed with the same thing, the doctor said and I quote "this is the biggest Syrinx I've ever seen I don't understand how you are not paralyzed?" After 4 surgeries and a shunt hopefully things will get better, but as for you be careful with hot and cold items, please do your research you will find that some or all of problems that you are having could be related to your syrinx due to the pressure being placed on your spinal cord. I also have 2 young children, my oldest 11 saw me have a seizure right in front of him,it is very difficult for them, dont forget that you are Supermom to them and nothing should be able to hurt you, so I hope the best for you, any way that I can help please feel free to ask.

I was diagnosed with a syrinx cyst.It is located at my c/6 to t/2 and is 8mm in width.I am just wondering does this mean i have syringomyelia???? My regular physician is clueless but i am going to see a neurosurgeon in February.I do have several symptoms all in right side.My right hand goes numb and right leg.My right shoulder is sore and i get like tingling and burning in it.Also a newer symptom is the feeling of very cold water is being poured into spinal cord and also goes down into leg and foot..Any responses would be greatly appreciated.Thank you.

I was diagnosed with a syrinx cyst.It is located at my c/6 to t/2 and is 8mm in width.I am just wondering does this mean i have syringomyelia???? My regular physician is clueless but i am going to see a neurosurgeon in February.I do have several symptoms all in right side.My right hand goes numb and right leg.My right shoulder is sore and i get like tingling and burning in it.Also a newer symptom is the feeling of very cold water is being poured into spinal cord and also goes down into leg and foot..Any responses would be greatly appreciated.Thank you.

I was diagnosed as having a syrinx in spinal cord but was having symptoms way before they found it.i was not told that i had syringomyelia or cm. My cyst is from c/6 to t/2 and is 8mm wide.the right side has been mainly affected with numbness tingling and a feeling of cold water running through it.my left arm started to hurt so severly the other night i was bawling and could not even hold baby to feed him,so i decided to go to the er and they treated me like i was a crazy person.they said they looked at my mri and the cyst could not be causing my symptoms it is not impinging anything.and furthermore they said they spoke to my neurosurgeons partner,whom i have not even seen yet until feb23 said they will not do any operations on me.i am just wondering do i keep appt with neuro???what do i do now?? If not the cyst causing symptoms what else could it be??? Someone please help me!!!!!i am on neurontin and selexa for depression and am now using a cane to help me walk..does anyone have any insight to this please help me i feel like i am losing my mind....

Hi, posting from Cape Town, South Africa

My post op relief was a dream but 2 years on my symptoms have creeped up on me with a vengeance. Sharp stabbing pain in back, tightness in neck, sensitivity to light, trouble focussing on text when reading, constant need to use the loo, good ole "Chiari" headache is back! Cannot hold my blowdry brush (imagine how long it takes me to do my hair!), vertigo. Painkillers have helped some but I think I've overdone it over the years - tum burns now if I consume even one pill - doc says I may have developed an ulcer!

My apologies for my rant - just had to get it out...

there is hope! i have had a syrinx for 2 yrs. iwas ready to hav surgery until i was put on lyrica and carbamazepin.... walkn, talkn, thinkn again. thank God! still considrn surgry cz im 29 with no kids but ive come so far not sure if i shld risk it. yes stress does seem 2 ncrease symptoms. God bless!

You will be just fine, easier said then done my 18 year old has it and my 14 year old as well and myself and im a mom of 4 you can do it hun