FAQ/Help |
Calendar |
Search |
Today's Posts |
07-05-2007, 06:43 PM | #1 | ||
|
|||
Junior Member
|
My wife has been having many neurological issues over the past 3 years and we have seen several neurologists and it seems we have gotten nowhere. Lots of test, mri's, scans, eeg's emgs and we have no solid answer. She basically gets extremely fatigued to where she can barely walk, she has seizure like episodes, poor memory, speech and coordination problems. They have said it doesn't appear to be MS, epilepsy, lyme, or hashimoto's. However, I did read about Chiari malformations and have access to her MRI's and it looks like it may be possible, but the radiologists didn't mention it. I have attached the suspect MRI photo. Does this look like possible Chiari? Any neuroradiologists in the crowd?
|
||
Reply With Quote |
07-06-2007, 09:53 AM | #2 | |||
|
||||
Senior Member
|
need a different view
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile |
|||
Reply With Quote |
07-10-2007, 08:35 PM | #3 | ||
|
|||
Junior Member
|
Okay...here is a few shots from a different angle. Does this look like possible CM1?
|
||
Reply With Quote |
07-11-2007, 08:56 PM | #4 | ||
|
|||
New Member
|
Hi, I am sorry, I am not a doctor. I wanted to tell you that my family has been through the same testing that your wife has been through. We live in Louisiana and my nephew has seen 3 doctors here and then we went to Houston. Houston is who diagnosed my nephew with Chiari. However, would not do anything until he had an "episode" (heart attack or stroke). He then went to North Shore Long Island Jewish in New York. The doctors there are amazing. My nephew was playing 3 days after his brain surgery and 2 days after his back surgery. My sister was just diagnosed yesterday with Chiari. My best advise to you is to email the doctors there and tell them your story. They will either email you back or give you phone call. I wish you the very best of luck.
|
||
Reply With Quote |
07-12-2007, 05:50 PM | #5 | ||
|
|||
Junior Member
|
Thanks for the reply and I'm glad things are working out for your nephew...and I'm sorry about your sister. As you said, I think the key is to be proactive about getting results instead of waiting. I will look for a doctor where you mentioned maybe they can help. Thanks again!!
|
||
Reply With Quote |
07-13-2007, 09:19 AM | #6 | |||
|
||||
Senior Member
|
There are other Chiari experts around the US . Where do you live ? Might be able to help you find one close toyour home. That other Xray you put up its hard to tell.
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile |
|||
Reply With Quote |
07-13-2007, 06:10 PM | #7 | ||
|
|||
Junior Member
|
Currently live in eastern NC...very close to Raleigh. Duke and Univ of NC are both fairly close. Do you know of any experts near Raleigh? Thanks.
|
||
Reply With Quote |
07-14-2007, 09:29 AM | #8 | |||
|
||||
Senior Member
|
Here is a map with suggested drs from Patients . Dr. Rosner in NC is good
http://www.chiariconnectioninternational.com/map.html also : NORTH CAROLINA Dr. James Adelman Neurologist 510 N. Elam Ave. Greensboro, NC 27403 336.547.8000 Dr. Herbert Fuchs Neurosurgeon Duke University Raleigh, NC Dr. Robin Koeleveld Wake Medical Center Raleigh, NC Also : North Carolina Tim George - Neurosurgeon Duke Medical #3272 Durham, N.C. 27710 (919) 684-5013
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile Last edited by razzle51; 07-14-2007 at 09:33 AM. Reason: ADD |
|||
Reply With Quote |
07-15-2007, 10:47 AM | #9 | ||
|
|||
Junior Member
|
Thanks for the names. I will try to contact one close by and hope for the best. I'll let you know how it goes.
|
||
Reply With Quote |
08-25-2007, 01:38 PM | #10 | ||
|
|||
Member
|
You should check out the fourm on b12 deficiency. That also causes the same kinds of symptoms.
|
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
arnold chiari malformation | New Member Introductions | |||
Post-op Arnold Chiari Malformation surgery | Arnold Chiari Malformation & Syringomyelia | |||
Chiari malformation and attention deficit disorder | New Member Introductions | |||
New to RSD and Chiari I Malformation | New Member Introductions |