advertisement
Reply
 
Thread Tools Display Modes
Old 07-05-2007, 06:43 PM #1
dfaulk dfaulk is offline
Junior Member
 
Join Date: Jul 2007
Posts: 6
15 yr Member
dfaulk dfaulk is offline
Junior Member
 
Join Date: Jul 2007
Posts: 6
15 yr Member
Cool Chiari Malformation?

My wife has been having many neurological issues over the past 3 years and we have seen several neurologists and it seems we have gotten nowhere. Lots of test, mri's, scans, eeg's emgs and we have no solid answer. She basically gets extremely fatigued to where she can barely walk, she has seizure like episodes, poor memory, speech and coordination problems. They have said it doesn't appear to be MS, epilepsy, lyme, or hashimoto's. However, I did read about Chiari malformations and have access to her MRI's and it looks like it may be possible, but the radiologists didn't mention it. I have attached the suspect MRI photo. Does this look like possible Chiari? Any neuroradiologists in the crowd?





dfaulk is offline   Reply With QuoteReply With Quote
Old 07-06-2007, 09:53 AM #2
razzle51's Avatar
razzle51 razzle51 is offline
Senior Member
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
razzle51 razzle51 is offline
Senior Member
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
Default chiari

need a different view
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With QuoteReply With Quote
Old 07-10-2007, 08:35 PM #3
dfaulk dfaulk is offline
Junior Member
 
Join Date: Jul 2007
Posts: 6
15 yr Member
dfaulk dfaulk is offline
Junior Member
 
Join Date: Jul 2007
Posts: 6
15 yr Member
Default New Angles

Okay...here is a few shots from a different angle. Does this look like possible CM1?
Attached Images
File Type: jpg Chiari2.jpg (57.7 KB, 1637 views)
File Type: jpg chiari3.jpg (59.5 KB, 1757 views)
File Type: jpg chiari4.jpg (57.4 KB, 1703 views)
dfaulk is offline   Reply With QuoteReply With Quote
Old 02-04-2008, 08:12 AM #4
Hanhan Hanhan is offline
New Member
 
Join Date: Feb 2008
Posts: 1
15 yr Member
Hanhan Hanhan is offline
New Member
 
Join Date: Feb 2008
Posts: 1
15 yr Member
Default Hello

Quote:
Originally Posted by dfaulk View Post
Okay...here is a few shots from a different angle. Does this look like possible CM1?
I do not think it as CM1.
Hanhan is offline   Reply With QuoteReply With Quote
Old 07-09-2009, 05:11 PM #5
semilesh semilesh is offline
Junior Member
 
Join Date: Jul 2009
Location: Augusta GA
Posts: 12
10 yr Member
semilesh semilesh is offline
Junior Member
 
Join Date: Jul 2009
Location: Augusta GA
Posts: 12
10 yr Member
Default Its hard to tell but possible.

Quote:
Originally Posted by dfaulk View Post
Okay...here is a few shots from a different angle. Does this look like possible CM1?

Hey, I am going to preface this by saying I am not a doctor but I just recently went through the whole "MRI" thing where my doctor sat down and explained my MRI's and pointed out the actual Chiari. I would say it is kind of hard to see by these MRI's but it seems like she might have a slight Chiari. What my neurologist said is if you draw a straight line from the bottom of one side of the skull to the other, if anything hangs below that line, it could be chiari. Of course, the best thing to do is go to another doctor and get another opinion. Hope this helps!
semilesh is offline   Reply With QuoteReply With Quote
Old 07-19-2009, 10:13 AM #6
cseegersdc cseegersdc is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
cseegersdc cseegersdc is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
Default I looked at the MRI

Quote:
Originally Posted by dfaulk View Post
Okay...here is a few shots from a different angle. Does this look like possible CM1?
I am a doctor of Chiropractic who also has C1M and am looking for answers. I looked at all of the views of the MRI and would say that there IS what we would consider "crowding" at the foramen magnum ( the hole in the base of the skull). She probably also had this MRI laying supine, right? Well what happens when she is standing with the weight of the brain pushing downward? Go to the Mayo clinic website and look up Chiari 1 Malformation, and diagnosis, it will tell you exactly what studies are needed to confirm the diagnosis. There is a very good Chiari Center in Aurora Colorado as well.
Good luck to you and your wife!
Cseegers
cseegersdc is offline   Reply With QuoteReply With Quote
Old 07-19-2009, 12:40 PM #7
razzle51's Avatar
razzle51 razzle51 is offline
Senior Member
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
razzle51 razzle51 is offline
Senior Member
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
Default

Mayo Clinic is not the place to go for Chiari . There are many Chiari specialist all over the Us . where do you live so that we may help you find the right dr.
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With QuoteReply With Quote
Old 07-14-2010, 08:03 PM #8
sharlaj sharlaj is offline
New Member
 
Join Date: Jul 2010
Posts: 1
10 yr Member
sharlaj sharlaj is offline
New Member
 
Join Date: Jul 2010
Posts: 1
10 yr Member
Default

Quote:
Originally Posted by dfaulk View Post
Okay...here is a few shots from a different angle. Does this look like possible CM1?
we too are looking for a dr in louisiana for my 15yr old, but no luck. What clinic in houston actually helped your nephew.
sharlaj is offline   Reply With QuoteReply With Quote
Old 09-20-2010, 07:14 PM #9
concernedmom13 concernedmom13 is offline
New Member
 
Join Date: Sep 2010
Posts: 2
10 yr Member
concernedmom13 concernedmom13 is offline
New Member
 
Join Date: Sep 2010
Posts: 2
10 yr Member
Default

Quote:
Originally Posted by dfaulk View Post
Okay...here is a few shots from a different angle. Does this look like possible CM1?
not a doc but looks like slight chiari compared to my daughters 6mm; we are in same boat, desperately searching for chiari specialist in florida, we live in sarasota, and my daughter has already been to all childrens in st. pete; to no avail! i cant believe we came home with continued pain; and no recommendations for chiari specialist; they recommended narcotics as the next step for my 14 yr. old. I will continue to search for a chiari specialist; anyone out there from florida? we are our children's advocates...
good luck to you.
concernedmom13 is offline   Reply With QuoteReply With Quote
Old 07-11-2007, 08:56 PM #10
kdiebel kdiebel is offline
New Member
 
Join Date: Jul 2007
Posts: 1
15 yr Member
kdiebel kdiebel is offline
New Member
 
Join Date: Jul 2007
Posts: 1
15 yr Member
Default Chiari Malformation

Hi, I am sorry, I am not a doctor. I wanted to tell you that my family has been through the same testing that your wife has been through. We live in Louisiana and my nephew has seen 3 doctors here and then we went to Houston. Houston is who diagnosed my nephew with Chiari. However, would not do anything until he had an "episode" (heart attack or stroke). He then went to North Shore Long Island Jewish in New York. The doctors there are amazing. My nephew was playing 3 days after his brain surgery and 2 days after his back surgery. My sister was just diagnosed yesterday with Chiari. My best advise to you is to email the doctors there and tell them your story. They will either email you back or give you phone call. I wish you the very best of luck.
kdiebel is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
arnold chiari malformation shorty-5 New Member Introductions 3 04-26-2019 05:33 PM
Post-op Arnold Chiari Malformation surgery JoAnne Hobbs Arnold Chiari Malformation & Syringomyelia 13 03-06-2014 11:57 PM
Chiari malformation and attention deficit disorder daisy1959 New Member Introductions 12 08-08-2013 12:48 AM
New to RSD and Chiari I Malformation radmom32 New Member Introductions 4 01-03-2010 11:57 AM


All times are GMT -5. The time now is 10:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.