NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Arnold Chiari Malformation & Syringomyelia (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/)
-   -   Can you have seizure-like episodes? (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/48420-seizure-episodes.html)

hochsner19 09-26-2008 09:58 AM

Have either of you had a western blot test to rule out Lyme's disease????

I have all the symptoms you listed including seizure like episodes with convulsions. I had been to a neurologist, cardiologist having MRC, EEG, CAT scans and nothing really showed. It was very frustrating and I couldn't find any answers. 4 years and TONS of testing later, I found out I have lyme's. I never remember getting bit so it seemed strange but now explains my misery.

Well, Lyme's disease causes inflammation on the brain and spine and just as you guys described, you can actually feel the swelling/pressure. This could cause these episodes for you and may not be actual seizures.

Igenix is a great company if you want to get tested. Look up symptoms of chronic lyme disease.

SarahsDaddy 11-21-2008 02:36 PM

I have also had these same symptoms, after years of symptoms and misdiagnosis,after another. my last stage brought on seizure like symptoms too.
I am now finally being treated for lyme and babesia. the symptoms vary and seem to rollercoaster, sometimes joint pain, then vision, or headaches andstiffness. so crazy, good luck

hutch 07-22-2009 10:34 PM

Quote:

Originally Posted by StuffedHead (Post 306212)
I had this seizure-like episode and keep having some similar symptoms. First I smell ammonia/alcohol and this is right after exercise. Then I get a pressurized feeling in my neck/occipital area and that travels to the area just above my left ear and stays around there. It feels as if someone poured water inside my head making my head have too much pressure. That's the best description I can give. Then about two hours later, I have problems with spelling, writing, and recall memory. My hands get cold even in a warm room.

The first time it happened, I started to keel over to my right. I got very dizzy and lost my balance.

I have balance problems and can't handle uneven ground or slippery floors. I use the walls in my home to balance myself.

I have a whole slew of other symptoms. I just had a MRI this last week and my hands got cold and clammy during it. They also went numb. :eek: And afterward, my neck and head were feeling that familiar pressure.

Now I'm finding certain types of exertion bring on these symptoms, i.e.; lifting heavy objects, pushing heavy objects, anytime my hands are above my head, holding heavy objects, pulling wet towels from the washing machine, sideways motions and bending.

This week I'll have an EEG to see if I've been having seizures or something else.

I had an auto accident 25 years ago where I had severe whiplash and a severe concussion. My left shoulder was also pulled in an awkward position. I recovered fully from all the symptoms and no after effects.

I've been reading the symptoms of Chiari and they sound right on but it could be something else too. I guess I will know soon enough this next week when I see the doctor.

Thanks for reading!

Hello, I have those same strange smells and headaches. I got diagnosed with partial epilepsy about 8 months ago. I called it a chemical smell. It really is strange how our brain can cause that? I also had a accident--I got hit in the head by a truck back in 1979 so I know I had head trauma. Well best wishes with your EEG--let me know how it goes. hutch


All times are GMT -5. The time now is 09:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.