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Old 07-24-2008, 05:01 PM #1
dizzie lizzy dizzie lizzy is offline
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Yes to about 75% but they are all the same symptoms that are associated with everything they have yet to rule out. I am SUPER needle phobic so I am reluctant to look at MCS until other less invasive tests have been done and ruled out.

The weirdest symptom I've had so far happened last night. Every time I laid down I smelled this strong pungent smell (like saurkraut that had gone bad). It was bad enough that I had to get up to throw up. It went away when I sat up or stood up so I slept sitting up. My temperature was 99.2 (my norm is 98.4) at the time. I sweated suddenly this morning and my temp went down to 98.6. I also had crazy dreams, felt like the mattress was being moved but nobody was there, and when I opened my eyes to see if my BF was getting into bed I saw a weird fireworks like things spewing from the air conditioners (which I could tell were not real even though I was definitely seeing them).

I found and started 1000mcg of methylcobalamin so hopefully some of the weirder things will resolve soon. sigh....
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Old 07-25-2008, 03:48 PM #2
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Originally Posted by dizzie lizzy View Post
Yes to about 75% but they are all the same symptoms that are associated with everything they have yet to rule out. I am SUPER needle phobic so I am reluctant to look at MCS until other less invasive tests have been done and ruled out.

The weirdest symptom I've had so far happened last night. Every time I laid down I smelled this strong pungent smell (like saurkraut that had gone bad). It was bad enough that I had to get up to throw up. It went away when I sat up or stood up so I slept sitting up. My temperature was 99.2 (my norm is 98.4) at the time. I sweated suddenly this morning and my temp went down to 98.6. I also had crazy dreams, felt like the mattress was being moved but nobody was there, and when I opened my eyes to see if my BF was getting into bed I saw a weird fireworks like things spewing from the air conditioners (which I could tell were not real even though I was definitely seeing them).

I found and started 1000mcg of methylcobalamin so hopefully some of the weirder things will resolve soon. sigh....
I copied and pasted this......
A doctor makes the diagnosis of multiple chemical sensitivity based on the symptoms. The diagnosis is supported if the symptoms recur after repeated exposure to the chemical substance; recur after exposure to levels much lower than those that have been tolerated previously or that are commonly tolerated by others; subside when the person leaves the offending environment; and develop in response to a wide variety of unrelated chemical substances.

A blood test may be performed to measure red and white blood cell counts and antibody levels but is of no proven value and to rule out a true allergy.


My testing was done this way, I did some blood allergy testing because I asked for it to be done.
So don't worry about any needles, you don't have to do the blood work.

Also early in MCS you scent of smell is heighten, I was able to smell all kinds of things and others couldn't (my family though I was going crazy). I still go crazy over smelling things and one one else can smell it.

I don't know if this is the same as what your talking about but I have a feeling like I'm floating or that the bed is floating a lot when I lay down and close my eyes.



~~~~LOL, to show you how well I can smell things. My son put a empty bottle of mouth wash, no cap on the bottle (Tom's of Main Cinnamint) in a zip lock bag, sealed it and brought it into the office just now, and I could smell it before he even got all the way over to me.
__________________
Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
.


DX with Fibromyalgia, 1998
DX with MCS (Multiple Chemical Sensitivity), June 2008
DX with Food Allergies, wheat, sesame, fresh pineapple


.

Last edited by momXseven; 07-25-2008 at 03:55 PM. Reason: added more
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Old 07-28-2008, 02:14 PM #3
dizzie lizzy dizzie lizzy is offline
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Quote:
Originally Posted by momXseven View Post
I copied and pasted this......
A doctor makes the diagnosis of multiple chemical sensitivity based on the symptoms. The diagnosis is supported if the symptoms recur after repeated exposure to the chemical substance; recur after exposure to levels much lower than those that have been tolerated previously or that are commonly tolerated by others; subside when the person leaves the offending environment; and develop in response to a wide variety of unrelated chemical substances.

A blood test may be performed to measure red and white blood cell counts and antibody levels but is of no proven value and to rule out a true allergy.


My testing was done this way, I did some blood allergy testing because I asked for it to be done.
So don't worry about any needles, you don't have to do the blood work.

Also early in MCS you scent of smell is heighten, I was able to smell all kinds of things and others couldn't (my family though I was going crazy). I still go crazy over smelling things and one one else can smell it.

I don't know if this is the same as what your talking about but I have a feeling like I'm floating or that the bed is floating a lot when I lay down and close my eyes.



~~~~LOL, to show you how well I can smell things. My son put a empty bottle of mouth wash, no cap on the bottle (Tom's of Main Cinnamint) in a zip lock bag, sealed it and brought it into the office just now, and I could smell it before he even got all the way over to me.
WOW! If only I could smell like that. I generally tend to have a diminished sense of smell. The feeling of the bed moving was literally what it feels like when you are in bed and someone heavy gets in next to you- you know how the mattress moves. Anyway, that seems to have gone. The B12 methyl gave me a huge high the 1st day I took it. Then I crashed really hard. The next day (Fri) a huge high again and crashed at around 4pm (although I hadn't taken it again). My temperature Friday night was up to 99.5.Saturday I took it and felt really tired. Then yesterday I was in rehearsal and I was feeling fine and then all of a sudden I kind of palsied up. I don't know what else to call it. All of a sudden my knees would buckle with each step I took and I felt I had less and less control over all of my muscles including my tongue. I started to have a hard time pronouncing words and started having a hard time coming up with them. I had to stop. It lasted for about an hour. I could still read out loud but trying to express my own thoughts was impossible. It gradually went away. I am really tired today and kind of dizzy again. I've heard lots of people say you feel worse when the B12 starts to heal your nerves. Is this what they mean?
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Old 08-01-2008, 10:10 AM #4
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Originally Posted by dizzie lizzy View Post
I've heard lots of people say you feel worse when the B12 starts to heal your nerves. Is this what they mean?


I'm sorry, I can't help on this. I've never had B12 shots.
__________________
Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
.


DX with Fibromyalgia, 1998
DX with MCS (Multiple Chemical Sensitivity), June 2008
DX with Food Allergies, wheat, sesame, fresh pineapple


.
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Old 08-09-2008, 04:49 AM #5
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Lightbulb Answers to my symptoms

I no longer have those strange symptoms which I understand were migraines without headaches. That diagnosis was made by a neurologist. At first I thought he was shining me on but then everything made sense.

I first got these strange symptoms the same day I was hospitalized for Thyrotoxicosis on Mother's Day weekend. They were mild then but worsened as the days past. Then as my TSH raised above 0.20 to 0.46 my migraines disappeared. Boy was I thankful! No more dizziness, smelling strange odors, nausea, stuffed head feeling, etc.

Although, I do have one remaining strange symptom - a painful right ear lobe. I think my TSH is still too low for me but I couldn't convince my primary or endo doctors. They wanted me to stay on my current dose. When I exercise I get sore thighs and shoulders. From what I've read, those are the two areas which weaken with HYPERthyroidism. That's what leads me to believe I am still HYPER. I also have a faster than normal heart rate. Normal for me sitting up resting is 54. I'm currently running between 62 and 72. But no doctor is listening to me. AARGH!

I'm scheduled for tests this next week. Maybe they'll listen then when the doctors see the TSH is too low and hear my laundry lists of symptoms.
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