hi my name is jodie i live in adelaide i am 30yrs old and was diagnosed with chiari 1 malformation about 5yrs ago how my life has changed since then, the pain is hard to describe to someone who doesnt hav the condition themselves at this stage ive had 2 head surgerys with no change at all in fact i am worse now then before surgery im a really angry person now i would really like to talk to someone with chiari 1 malformation maybe it might help me.
im really really happy for your son great to hear he is doing well my symptons are headaches,altered sensation down my left side cant grip things i drop alot of things feel like i hav extra limbs, hiccups (alot) i think the fact i am so angry is that no one understands they can say they do but infact they really dont