My sister is 19 years of age and four years ago was told she has between 13 to 24mm Arnold-Chiari Malformation. She suffers from Partial-Complex, Tonic Clonic and Absence seizures, black-outs, temporary paralysis, pins and needles in arms and legs, headaches, dizzy spells, metal taste in mouth, stuttering sometimes, neck pain, back pain and other symptoms..we cant find a doctor willing to operate and the hospitals in Brisbane will not help! Has anyone had a similar problem and if so can anyone refer a surgeon that will be able to help or try to help?