:rolleyesHi, I am new to this. I was diagnosed with Chiari One in 2004 after waking up one night feeling like I had been hit in the head with a baseball bat. I am lucky and my internist and neurologist diagnosed it quickly. Due to a prior known cavernous malformation and seizures my neurosurgeons thought it best to perform surgery. When they were operating, they ran into troubles because my blood vessels were to small to complete the decompression surgery. My headached have continued daily for the past 4 years. I have been to several neurologists, pain management doctors as well as other specialists. I ended up back with my original doctors as I always felt they were very knowledgeable, but was always seeking more. This past summer I was diagnosed with occipital neuralgia. Last month, I had a neuro stimulator placed in my head for pain. This was the best decision ever made. It is the first time in four years my days are not dictated by pain. I do wonder thought if there is still something going on with the Chiari One. Since I was diagnosed two more members of my family have been diagnosed and they are the only two members who have had MRIS.
Wishing you all a pain free and healthy 2009. I am looking forward to learning through this site