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06-24-2011, 12:17 PM | #21 | ||
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I think that those of us with Chiari have going so many years with our symptoms that our body has adapted and we've learned to work around them.
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11-17-2011, 10:40 PM | #22 | ||
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Boy, it seems like a lot of us have gone through hell just to get a diagnosis.
I still don't have a diagnosis (besides Fibromyalgia), but I've been experiencing all these strange Chiari symptoms for years. The neurologist refuses to send me for a brain MRI. He insists that my headaches are migraines (although the pain is in the back of my head not the side) and that the neck spasms are spasmodic torticollis. I asked him about Chiari malformation. He said that he's only seen two cases of Chiari in his 30 years of practice, so it couldn't be that. I guess that he has X-ray vision! I am very frustrated and scared but I won't back down until I found a doctor who will help me. No one should have to live with such pain. |
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