advertisement
Reply
 
Thread Tools Display Modes
Old 04-18-2009, 12:31 PM #1
Online-Jenny Online-Jenny is offline
New Member
 
Join Date: Apr 2009
Location: Suburb of Cleveland Ohio
Posts: 3
15 yr Member
Online-Jenny Online-Jenny is offline
New Member
 
Join Date: Apr 2009
Location: Suburb of Cleveland Ohio
Posts: 3
15 yr Member
Default HELP! Does this look like Chiari I to you??

Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
Attached Thumbnails
HELP! Does this look like Chiari I to you??-0099-jpg   HELP! Does this look like Chiari I to you??-0100-jpg   HELP! Does this look like Chiari I to you??-0101-jpg   HELP! Does this look like Chiari I to you??-0102-jpg   HELP! Does this look like Chiari I to you??-0127-jpg  

Online-Jenny is offline   Reply With QuoteReply With Quote

advertisement
Old 04-20-2009, 03:35 PM #2
betty21 betty21 is offline
Junior Member
 
Join Date: Apr 2009
Posts: 11
15 yr Member
betty21 betty21 is offline
Junior Member
 
Join Date: Apr 2009
Posts: 11
15 yr Member
Default hi

hi

have you ever had surgery on your head?? i looked at your scans it to me it looked like maybe you had had part of the bone removed already?? failing that it does look a bit like chiari to me

ps - im new here - ive had the decompression surgery already


Quote:
Originally Posted by Online-Jenny View Post
Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
betty21 is offline   Reply With QuoteReply With Quote
Old 04-27-2009, 11:19 AM #3
razzle51's Avatar
razzle51 razzle51 is offline
Senior Member
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
razzle51 razzle51 is offline
Senior Member
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
Default chiari

Looks like you have plenty of room.
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With QuoteReply With Quote
Old 06-06-2009, 01:05 PM #4
christie.lynn christie.lynn is offline
New Member
 
Join Date: Jun 2009
Posts: 1
15 yr Member
christie.lynn christie.lynn is offline
New Member
 
Join Date: Jun 2009
Posts: 1
15 yr Member
Default

Get yourself tested for Ehlers-Danlos syndrome. People with EDS tend to have many symptom in spite of a minimal herniation


Quote:
Originally Posted by Online-Jenny View Post
Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
christie.lynn is offline   Reply With QuoteReply With Quote
Old 07-09-2009, 05:42 PM #5
semilesh semilesh is offline
Junior Member
 
Join Date: Jul 2009
Location: Augusta GA
Posts: 12
15 yr Member
semilesh semilesh is offline
Junior Member
 
Join Date: Jul 2009
Location: Augusta GA
Posts: 12
15 yr Member
Default hard to tell...

Quote:
Originally Posted by Online-Jenny View Post
Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
Looking at your photos, it doesn't look to me like you have Chiari. Its really difficult to tell from a photo without being able to measure it though. Most Chiari's are only 5-15 mm herniations. Its not very big thus difficult to see just by looking at it. It seems like you need to follow up with this though. It took me over a year and a half of going into the doctor almost once a week before they finally figured out what was wrong with me. I know it can be frustrating but just keep at it until you get answers! I wish you the best of luck!
semilesh is offline   Reply With QuoteReply With Quote
Old 07-14-2009, 12:15 AM #6
wild-at-heart wild-at-heart is offline
New Member
 
Join Date: Jul 2009
Posts: 5
15 yr Member
wild-at-heart wild-at-heart is offline
New Member
 
Join Date: Jul 2009
Posts: 5
15 yr Member
Default

I couldn't tell you if that is a chiari or not. I have Chiari Malformation Type 1. I've had the surgery. I also have syringomyelia. My regular doctor told me when I was twelve and had a severe onset of symptoms that everything was fine. The radioligist said everything was fine. 7 years later I saw a neurologist and finally someone figured out what was wrong with me. And they helped alleviate the symptoms.

See a neurologist.

Also, for me, straining and rushes of adrenaline/blood flow made it worse. Like, 100 times worse. If you think you might have a chiari, lay off the heavy lifting and sprinting. Also, try to chill out. Stress can't help this. Relax as best as you can and take pain killers sparingly if you need them. Really, for me, I just couldn't yell, strain, lift heavy things, sprint, or have strong adrenaline rushes and I'd be mostly okay.
wild-at-heart is offline   Reply With QuoteReply With Quote
Old 07-19-2009, 10:24 AM #7
cseegersdc cseegersdc is offline
New Member
 
Join Date: Jul 2009
Posts: 4
15 yr Member
cseegersdc cseegersdc is offline
New Member
 
Join Date: Jul 2009
Posts: 4
15 yr Member
Default

Quote:
Originally Posted by Online-Jenny View Post
Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
On the coronal view ( the view that looks like you are looking through the back of the head) It looks as though you have something with the intensity signal of bone which is causing a slight indentation on the right side of the base of your cerebellum. It does not look like you have what would be considered a C1M though, as your cerebellar tonsils sit above the level of the foramen magnum ( the hole at the base of your skull). I would consult with a different neurologist.
Good Luck!
cseegersdc is offline   Reply With QuoteReply With Quote
Old 03-17-2015, 01:50 PM #8
skyle skyle is offline
New Member
 
Join Date: Mar 2015
Posts: 1
8 yr Member
skyle skyle is offline
New Member
 
Join Date: Mar 2015
Posts: 1
8 yr Member
Exclamation Yes you have chiari

Quote:
Originally Posted by Online-Jenny View Post
Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.

Yes you have Chiari. The tonsils are below the foramen magnum. Please seek out a Chiari specialist if you have not already done so.
skyle is offline   Reply With QuoteReply With Quote
Old 03-17-2015, 03:33 PM #9
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Default

Hello skyle,

Welcome to the NeuroTalk Support Groups.

I just wanted to let you know that Online-Jenny hasn't posted here since 2009 so it is possible they will not see your post.
Lara is offline   Reply With QuoteReply With Quote
Reply

Tags
aneurysm, brain, chiari, mri


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Chiari malformations kimy General Health Conditions & Rare Disorders 3 08-07-2012 05:06 AM
AZ Syringo Chiari Group receives Proclamation Sept is Chiari & Syringo month! AzSyringoChiari Arnold Chiari Malformation & Syringomyelia 0 10-05-2008 06:39 PM
AZ Walk for Chiari/AZ Syringo Chiari Support Group AzSyringoChiari Arnold Chiari Malformation & Syringomyelia 3 09-01-2008 06:35 PM
Is Chiari REALLY all that rare?? LIZARD Arnold Chiari Malformation & Syringomyelia 4 03-19-2008 10:25 AM
8 yr old with Chiari Dana Reese New Member Introductions 4 03-05-2008 05:09 PM


All times are GMT -5. The time now is 06:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.