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04-18-2009, 12:31 PM | #1 | ||
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Hello All. I am new to this forum. I have had a surge or neurological symptoms that started in Mid February (with my first trip to the ER). I just had my first MRI on my brain and the Radiologist's report said it was normal. I do not feel normal. I have severe ringing in one ear, one dialated eyeball, eyelids that don't want to stay closed and flutter badly when I try, major headaches in the morning and evening, dizziness when I bend over then stand up, numbness, tingling and pain throughout my extremeties and back, digestive issues, emotional issues, ........ and the list goes on. After getting the MRI report I decided to review the films myself on the DVD they gave me. After many days of searching through MRI images online I found some photos of Chiari I. If you are familiar with the disorder, please take a look at my photos and let me know if you agree. Also, I need some advice...........my doctor seems to want to go off of the Radiologists report only, but I do not agree with it. I am working on getting into the Cleveland Clinic Neurology Department as I live nearby. Is there anything I can do at home to help alleviate the symptoms? Thanks for your time. **As a note---I also have a post in the Aneurysm threads inquiring about something else from the MRI. If you have any interest of experience with them, please take a look at that one also.
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04-20-2009, 03:35 PM | #2 | ||
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Junior Member
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hi
have you ever had surgery on your head?? i looked at your scans it to me it looked like maybe you had had part of the bone removed already?? failing that it does look a bit like chiari to me ps - im new here - ive had the decompression surgery already Quote:
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04-27-2009, 11:19 AM | #3 | |||
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Senior Member
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Looks like you have plenty of room.
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06-06-2009, 01:05 PM | #4 | ||
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New Member
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Get yourself tested for Ehlers-Danlos syndrome. People with EDS tend to have many symptom in spite of a minimal herniation
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07-09-2009, 05:42 PM | #5 | ||
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Junior Member
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07-14-2009, 12:15 AM | #6 | ||
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New Member
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I couldn't tell you if that is a chiari or not. I have Chiari Malformation Type 1. I've had the surgery. I also have syringomyelia. My regular doctor told me when I was twelve and had a severe onset of symptoms that everything was fine. The radioligist said everything was fine. 7 years later I saw a neurologist and finally someone figured out what was wrong with me. And they helped alleviate the symptoms.
See a neurologist. Also, for me, straining and rushes of adrenaline/blood flow made it worse. Like, 100 times worse. If you think you might have a chiari, lay off the heavy lifting and sprinting. Also, try to chill out. Stress can't help this. Relax as best as you can and take pain killers sparingly if you need them. Really, for me, I just couldn't yell, strain, lift heavy things, sprint, or have strong adrenaline rushes and I'd be mostly okay. |
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07-19-2009, 10:24 AM | #7 | ||
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Good Luck! |
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03-17-2015, 01:50 PM | #8 | ||
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New Member
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Yes you have Chiari. The tonsils are below the foramen magnum. Please seek out a Chiari specialist if you have not already done so. |
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03-17-2015, 03:33 PM | #9 | |||
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Legendary
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Hello skyle,
Welcome to the NeuroTalk Support Groups. I just wanted to let you know that Online-Jenny hasn't posted here since 2009 so it is possible they will not see your post. |
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