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Old 06-07-2009, 10:10 PM #1
neuronutty neuronutty is offline
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Join Date: Jun 2009
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10 yr Member
neuronutty neuronutty is offline
New Member
 
Join Date: Jun 2009
Posts: 3
10 yr Member
Default Early Detection vs. Surgery - Your Experience?

So from what I have read early detection seems to be important, but from many peoples experience, improvements in the initial condition seem to be offset by other problems brought on by such traumatic surgery.

What is the consensus on Early Detection vs. Surgery? I believe that symptoms of Chiari are beginning to manifest themselves in me at the age of 29, so I feel like its kind of the end of the "early" detection period. Should I be happy I'm not collapsing in pain and forgo surgery, or will I be collapsing in pain eventually anyway?

I know this is a complex disease with difficult to understand symptoms but any help from those experienced with this would be appreciated. I am very interested to hear about anyone else who had a slow onset of Chiari and if it eventually progresses to the point of extreme pain and headaches or if it starts to resolve itself over the years.

I personally want to avoid surgery like the plague, to me it seems like a simple enough concept, cut out a piece of the skull and call it a day, but it appears that the associated neck issues make this a nightmare surgery...

I have lived with incessant neck discomfort for nearly my entire life, and it has begun to get worse. Recently I will go weeks at a time feeling as if I have whiplash. Some days I can barely turn my head without stiffness and pain, other days nothing seems to be wrong. On the worst days the pain spreads into my upper back and shoulders... Stretching seems to help but can lead to a hot feeling in my neck. When I stretch I feel lots of cracking in my shoulders and around my upper back but lifting my arms over my head seems to help things a bit temporarily. Perhaps every 2-5 months I get a pounding headache that seems to throb behind my eyeballs. Nothing is different about my day except maybe stress levels, I go to work, I come home, I go places with my GF and drink a couple glasses of wine every now and then, I occasionally swim in the pool... I do drink lots of caffeine. If I don't drink it I feel depressed and lethargic.

Today I woke up and my wrist hurt like it had been broken. I've never felt pain like that in my joints and started wondering if this might be arthritis related. Even now my wrist is pained by anything but the most ordinary movements. Reaching my hand to hit the backspace key is painful, not dreadfully, but in a way I have never felt. I guess it could be repetitive stress, but is there any record regarding joint pain and chiari?

Thank you so much to anyone that can help answer these questions either through personal experience or knowledge. I am heading to the doctor this week and will post back here with answers.
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