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-   Arnold Chiari Malformation & Syringomyelia (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/)
-   -   pain/headaches 2 years later? (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/96713-pain-headaches-2-a.html)

razzle51 10-06-2009 10:29 AM

A CSF leak is an escape of the fluid that surrounds the brain and spinal cord

tasha62 10-13-2009 12:11 PM

hi guys,sounds like im not alone and not going mad!!!! thought all the headaches were back due to the nerve memories??? i was told this at my last visit to surgeon im not sure what to do next as it seems to be getting worse as im now getting pains down my leg and a constant bad back??which im having to pay for to be treated in the hope that all teh pain was due to my back?? im so pleased i looked it all up on the net as i can now place all my symptoms as real pain and not somthing thats in my head!!! lol

sazz 11-07-2009 10:53 PM

CSF leak
 
Quote:

Originally Posted by jesuslover (Post 574425)
what is a CSF leak???

The dura matter encases the brain and spinal cord in cerebrospinal fluid.
Hey, not a doc, but certainly know about CSF leak. After my decompression surgery in Jan 08, I was recovering wonderfully for the first 3 weeks. I did have pain and stiffness from the surgery, but all my prior chiari symptoms had disappeared. Three weeks after surgery, I got a CSF leak. just a couple of drops, but it didn't stop. The leaking persisted for almost two months!! This was the most painful experience I could ever imagine. I slept sitting straight up, and every night, the fluid would soak through two bath towels. Any time I would have to vomit, which was a lot, the fluid leak was projectile, sometimes over a foot. A couple times, I felt that my head would suck in air, after losing so much fluid. I don't know if it makes sense, but It felt and sounded like air bubbles being sucked into my head. The headache I got at this time was so much different and so much worse than any chiari headache I've ever had.


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