NeuroTalk Support Groups - Frequent Bursitis and Tendinitis

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Hi

One of the things that helps my pain is massage. Its because my muscles all
get tight. Its also that heat is helpful. I also find a hot tub to be helpful.

When it comes to exercising and things. I do get into water, but not exactly
for exercising, its for the heat.

I do cardio exercise, but only minor type.

donna

So I think I figured out what I have that is causing my tendinitis/tendinosis in multiple places, plus patellar dislocations - it's called Joint Hypermobility Syndrome (or, alternatively, Benign Joint Hypermobility Syndrome).

JHS is a genetic disorder affecting collagen production, and is thought to be a mild form of Ehlers-Danlos Syndrome Type III. It can result in multiple tendinitis/tendinosis, bursitis, sprains/dislocations, easy bruising, etc. Pain usually starts in childhood/adolescence but also can first be symptomatic in adulthood. It is apparently not that uncommon but underdiagnosed.

If this sounds like your symptoms, check it out. Here are a couple of links that I found useful. I apparently can't directly post links yet (being a new user) so sorry to have to write them out like this:

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swiftfox, I have had very similar symptoms but have been unable to get a diagnosis of any sort. It started up about three years ago with a bad attack that left my lower arms and hands unusable and started down my lower left leg. The intensity subsided after about a week. over the last few years I've had similar attacks of less intensity but I don't think the affected tendons have ever healed properly from the initial attack. The tendonitis has progressively spread to different areas of my body. So far I have it in my wrists, forearms, elbows, shoulders, arches of feet, hips, and most recently knees. I also developed a strange visual issue and ringing in the ears about that same time but Im not sure if these symptoms were stress induced from worrying I had various diseases. Multitude of blood tests, MRIs and xrays came up negative. I gave up and have just been trying to ignore it for the last year or so. If you make any discoveries, please let me know.

Quote:

Originally Posted by swiftfox (Post 544071)

These sound like my symptoms - tendinitis/tendinosis in knees, elbows, hands, hips, and sometimes shoulders, and one of my ankles even got into the act at one point. Plus I dislocated both kneecaps within a three-month period, and also have some muscle cramps but I don't know if that's related. It all started about two years ago, and I'm 31 now.

I've also been to lots of doctors and had lots of tests but they keep coming back negative. Has anyone gotten a diagnosis for anything like this at all? It just seems like the connective tissue is weakened and/or not healing well, but no one seems to have any ideas why this might be the case. Meems, your ideas sound like possibilities for sure - but are there other conditions that could cause this as well?

Also, has anyone found any meds, exercises or other therapies that have helped treat this kind of pain? I am trying to keep in shape but my physical therapist keeps telling me to stop doing whatever it is I'm doing (biking, strengthening, swimming, etc.) as soon as I start getting substantial pain. I'm getting ultrasound therapy for my elbows right now and kinesiotaping the heck out of them but I don't think that's helping.

Also, meems, I might lay off the naproxen if I were you. I had about a 6-month period of really bad pain flareups, and in retrospect I think the severity might have been due to doping myself up with high doses of naproxen. When I found out that naproxen interferes with collagen deposition (and hence healing) I went off it, and though the pain continued the episodes after that were not as severe. Anyhow, it's just an idea.

I have Ehlers Danlos Syndrome and have frequent tendinitis in multiple locations. At best, I get it down to a dull roar, but it is always with me. Basically both wrists, base of both thumbs, hips, knees, ankles are affected to various degrees depending upon activity.

I would urge anyone with these symptoms to be evaluated by a geneticist and/or rheumatologist. EDS cannot be cured, and treatment is limited. The vascular form of EDS leads to rupture of the blood vessels and hollow organs. Other forms cause disability. But understanding the nature of the problem is invaluable.

I have been diagnosed with Plantar fasciitis in both feet, Achilles Tendinitis in both ankles, Retro Calcaneal Bursitis in both heels, elbow tendinitis on top and below (tennis and golfers), shoulder pain and wrist pain that have been x-rayed but not an MRI yet. I don't have any muscle pain. I'm very active and I'm struggling with why I keep getting all these itisis. I've been going to PT for 3 months now for my achilles and bursitis. 4 Dr's later no one can give me an answer.

Quote:

Originally Posted by Winkle (Post 923389)

Have you been using fluoroquinolone antibiotics frequently?
Cipro, Levaquin, Avelox?

These have been shown to affect tendon metabolism and integrity. When severe the tendons may rupture. This is not well understood yet, esp why some people are more affected than others.

There are also genetic tendencies as mentioned in the previous posts. It also might be an issue with people with Marfan's syndrome. This is a genetic problem with collagen maintenance.
People with Marfan's also have weak artery walls and need supervision to prevent dissections. They are taller than normal and sometimes have rib cage abnormalities too..but the Marfan's females I've known had very mild physical signs. It was their male children who had it severely. One had a tendon injury in a sprained ankle that did not heal up properly and she had to have a special operation by an orthopedic surgeon.

There are some supplements to target tendon issues, and they typically contain some form of plant product with silica and also magnesium. Some foods are higher in silica than others, whole grains (not processed), green beans, bananas.
http://www.vitalhealthzone.com/nutri...of-silica.html

You can search foods high in silica and see if you are eating those.

Widespread tendonitis

I am right there with all of you. I have had chronic pain for 5 years when I was 44. It started in my left shoulder. I now have it in both shoulders, elbows, wrists, hips, knees and ankles. I have seen numerous doctors in numerous fields. I just met with a geneticist at Iu who is going to do tests but thought that I might have a mitochondrial disease. He will be referring me to another specialists to check that. I am beyond frustrated. I feel my body deteriorating and no one seems to be able to figure out what is going on.

Quote:

Originally Posted by swiftfox (Post 544071)