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-   -   Anyone manage RA without the drugs? (https://www.neurotalk.org/arthritis/220666-manage-ra-drugs.html)

caroline2 03-10-2016 05:08 PM

Now this has me wondering since I've been eating more beans and ever and back to the chicken could these be the cause too of the rash on my foot which I can't get rid of...this foot has become quite arthritic and now the rash in the last 3 months or so. ummmmmm

Thanks very much for all this information. I'm familiar with Krispin via Weston Price.

kiwi33 03-10-2016 05:09 PM

"I could not fail to notice that you challenged me to prove my case without providing any evidence for your case besides your internet-claimed background."

I am a semiretired biomedical scientist. My colleagues and I have published more than 20 papers with an immunological focus, mainly concerned with innate immunity (the complement system).

"It's [the basis of autoimmune diseases] just wrong."

Do you have any evidence (links to PubMed would be nice) to support your opinion that it is "just wrong"?

Chemar 03-10-2016 05:24 PM

Hi folks
I am going to have to intervene here.
At NeuroTalk, we allow all views to be represented and we do not require anyone to provide credentials. It's always a help when things are backed up with research articles etc but not a requirement.

In fact, in the posting guidelines, all "professionals" are requested to hang their pro hat up at the door before entering!as this is primarily a community for patients and their caregivers, loved ones etc. and not for professionals.

We do also ask that members please disagree agreeably :) so I am hoping that is the tone this discussion will continue with.
Here are the posting guidelines http://neurotalk.psychcentral.com/showthread.php?t=1293
Thanks.

caroline2 03-10-2016 08:02 PM

The plot keeps getting thicker...I found this blog, To Bean or Not To Bean. With pros and cons to eating beans. I've been eating more beans than ever in the last two years or so and more aching joints than ever. Lectins!!!

http://www.jdmoyer.com/2011/02/15/to...-human-health/

So much dietary info out there today to weed thru and to consider for our own health, being aware of how our body feels when we eat certain foods.

kiwi33 03-10-2016 10:55 PM

Caroline, what kind of beans are you eating?

Some but not all beans are rich in exogenous lectins - while I doubt that they can enter your blood from your GI tract, potentially leading to systemic effects, if they are not denatured before eating the beans this can lead to unpleasant local GI tract symptoms.

It depends on the kind of bean but usually soaking them overnight and then cooking them well is sufficient to get rid of the exogenous lectins.

caroline2 03-11-2016 02:47 PM

Kiwi, I've been over dosing on all beans in the last 2-3 yrs as I see it now...so I'm going pretty cold turkey off beans and see if I'll feel better joint wise and in general. I make soups pretty often and beans have been a big addition in my soups....so I'll still make soups but eliminate beans....beans are so easy but maybe not that good for many of us.

I don't buy the dry beans, soak them, cook them etc...I buy most of my beans at whole foods and go with that way. Down the road I'll make a kidney bean/ground lamb chili, but not for a while.

lon1934 08-17-2019 06:10 PM

I Take No Drugs For My RA
 
I was dx'd with RA three years ago and was started on Plaquenil. Dr. had me discontinue in May this year. I have no real pain, just very stiff after getting out of bed in the morning or up out of a chair. I use a walker all the time for balance and support. It's uncomfortable, but I take short walks for exercise. I am 85 and also have PN.

lon1934 08-18-2019 05:21 PM

Quote:

Originally Posted by caroline2 (Post 1144005)
I have 2 friends just dx'd in the last year or so, and my neighbor is now trying to manage RA without the drugs...she took some of them for about a year and she's trying to recover from all the side effects.

The other friend is combining both but would LOVE to not take the drugs. Her doc is now testing for Lyme and maybe it's not RA.

I deal with body wide OA for all my life since 18 and I'll be 77....hip replacement in 2010, left me with a big mess of complications. grrrrrr

I just found this group and lots of good information here....thanks

I took Plaquenil for almost two years and my Rheumatologist had me discontinue this past May. I take no other drugs for my RA.


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