Indeed. They really need to see their doctor again.

If your friend has already been diagnosed as having bone density problems, I would imagine the doctor has already tested for Vit D and Calcium and Parathyroid or been referred to Endocrinologist?

Something like Vitamin D levels should be checked by blood test particularly if there are already physical changes. It's not always safe to just start taking high amounts of Vitamin D in the hope it'll help. I sometimes see people self-medicating on very large amounts that can in fact be harmful if done without knowledge and/or supervision.

Also, we should never underestimate possible side effects from psychotropic medications.

Regarding the Covid... do you think it's possible they actually had Covid but were tested at the wrong time so it came up negative? Any virus has the potential to cause longer term problems. My daughter, 20 years later, still deals with Post Viral Syndrome (Chronic Fatigue) after having Epstein Barr Virus. She'll be fine for months and then when she gets over stressed, bam, it hits. Never ending story.

Let us know how your friend gets on.
take care

Thanks so much for your input! My coworker has had chronic fatigue for years and definitely thought my autistic friend was exhibiting the same symptoms. A few days ago my friend felt dizzy and now my autistic friend is exhibiting COVID19 symptoms, sounds horrible when they speak like a terrible sore throat, fatigued, and upset stomach like I have seen in others with the new variant of COVID19. They don't have access to a COVID test yet. They are quarantining away from others. They are fully vaccinated and boosted. I hope they recover soon.

My friend with autism recovered from what appeared to be COVID19 then yesterday my BF who is diabetic saw my autistic friend displaying symptoms of diabetes and told them to go the ER immediately.

Hopefully it's just something temporary and it's all sorted with the visit to the ER.
If you ever find out more about their "bone changes", I'd be interested in knowing.

Thanks Lara. This person is now a diabetic and their condition was so bad that they had an episode where they felt they could not breathe and it sounded like choking to breathe. Terrifying! The test related to her bone changes and pain will come back fully on Monday.

Wow. I think there are so many people in the world who are diabetic who don't know until they are in crisis like that. They must have been feeling so terrible for so long.

So update, my autistic friend went to the doctor again and found out her medications for her pre existing conditions(s) were at a dangerously low dose causing a lot of the physical issues she was experiencing so her previous doctors had been completely irresponsible. The diabetes type symptoms appear to be a separate problem from her GI track that may be treatable to reverse the diabetes. The seizures also appear to be epilepsy occurring separate from the medication screw up.

I hope they're feeling better very soon. It's so difficult with having multiple conditions. Sounds as if their doctor is helping sort it all out now. Epilepsy isn't uncommon for those with autism diagnosis unfortunately. I forget the stats but it isn't that low. My two never had seizures thankfully.

Autism and Seizures: Whats the Connection?- Autism Research Institute

take care.

So this person's other issues are due to Lyme disease that had been untreated.

Hi funnylegs, thanks for the update. That's shocking news about your friend but at least they have found the cause of some of those problems at last. I hate to think of how much inflammation has been going on in their body. Just terrible. Hopefully with treatment now their arthritis and other original issues can be helped and that there is not in too much ongoing damage and pain. I wonder how long she's had it. Undiagnosed, late stage Lyme can have so many terrible consequences.