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11-11-2022, 03:29 PM | #1 | ||
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Legendary
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I wonder if your friend or someone caring for them has ever made contact with the Global Lyme Alliance. They have patient support services and information about clinical trials as well as up-to-date research.
Patient Support Services - Global Lyme Alliance p.s. I just read an article there when I was checking the url and someone has written about how they were losing vision but are now doing better. They had developed swelling on the optic nerve. It's in the blog section. |
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11-18-2022, 10:26 PM | #2 | ||
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Junior Member
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Quote:
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"Thanks for this!" says: | Lara (12-20-2022) |
04-28-2023, 10:54 PM | #3 | ||
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Junior Member
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So my friend finally found a doc that knew what they were doing and turns out my friend has spine damage and brain damage causing a lot of bizarre problems with movement but Lyme is still a factor as well as a reaction to a medication perhaps. MRI said
right thalamus damage nodule Tiny dominant of venous anomaly in the left corona radiata bulging spinal discs at T4, T5,T7. Is this result linked to seizures? Anybody else have insights on what this means? |
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01-11-2024, 06:34 PM | #4 | ||
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Junior Member
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My friend has EDS, Ehlers Danlos syndrome which means this person has joints that don't work, chronic pain, chronic fatigue, and seizures and it's genetic. They still have Lyme disease.
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