Hi all!

I'm new to everything - forums, message boards, horrible diseases. I may be at the wrong place - let me know if I am!!

I have incomplete transverse myelitis, sjogrens synd., neck bone spurs, diabetes, asthma, and a heart murmur. I am having trouble between my neuro and rheum getting treatment. I am wondering if anyone has experienced or heard of TM being caused by autoimmune diseases?

Thanks for your help.

Chele

Hi Chele,
It's Billye from the Sjogren's forum. I hope you get some answers. Some days it's slow. Check back often. I usually check the forums in the morning and in the evening. Some people only check it once a day.

Billye

Hey, thanks for letting me know Billye!! Glad to see a familiar face! Like everyone else, trying to get answers

Hope you have a good evening!

Chele

Sorry, I've got no answer for you, Chele, Just wanted to make you welcome. I usually post on the myasthenia gravis forum, and the gluten sensitivity/celiac forum. But I peek into this one since I had Grave's disease, and now have underactive thyroid.
I can certainly sympathize with your problems about getting treatment. Seems like when you go to several specialists, the last thing they want to do is cooperate in your treatment. What we need is a multi-specialty, patient oriented coordinator to coordinate all of the different doctors we see.
You're doing one of the best things you can for yourself by doing the research and trying to come up with some answers. If I run across any info, I'll definitely post it for you.
Hugs,

Thanks Loisba. I appreciate you peeking in!!

I'm just going to keep plucking away. I get overwhelmed easily - life is sure not like it used to be. Before this all hit I could multi-task with the best. I was the office manager for 4 psychologists, which means I was doing everything!! Don't miss the place, but I sure do miss my mind!!

Hugs back to you and blessings for your year!

Chele

Don't talk to me about multi-tasking! My days of that are long gone. Now I find that when I've got too many things going on in my life, I start to forget things, even though I'm only trying to do them one at a time. Too much stress can cause me some serious brain fog.
Hugs,

Oh, that's a rough one Chele. Yes, I have seen Lupus patients with that. What happens is their spinal cord gets inflamed from the lupus and the rest is history. We have to remember that Lupus can strick any system or organ we have. Even if the doctor says it is not from your Lupus, he is probably tellingyou on the other hand, that we really don't know. So, instead of going for a rhyme or a reason, get the treatment. You can be very miserable if not treated right away.

Star

hi i was diagnosed with transverse myelitis but i still have allot of neuro problems
the doctors thought i had m.s then they said i have lupus {border line} now they dont think its lupus. I would love to go into detail about my symptoms but they are far too many, but i can tell you about my new symptoms my eyes tremmor when i shut them and my tongue and mouth, the last time i went to c my dentist i nearly bit her fingers of, i was so embarrased. I have asked my doctor to do me a thyroid test, ive been reeding up on hyperthyroidism, and allot of my symptoms match with graves desease, does anyone reeding this have a mouth,eye and tongue tremmor would love to know.

Hiya, Chele, yep, I believe that I saw something about that in something I read on the Transverse Myelitis Association site. If you google that, you'll find it right away. There are a number of really good articles about TM there, mostly written in doctorese, but with a good medical dictionary if you don't know the lingo, you can get through most of it.

G

Our support group is meeting tomorrow at 10:00 am. At the Mishawaka, Indiana library downtown or you may call me 9403650164.
If you like to know more please feel free to contact me.
Thank you and I look forward to hearing from you.