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Old 11-16-2009, 03:24 PM #1
Jaystia Jaystia is offline
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Unhappy Celiac Testing

I was diagnosed with Celiac's disease in July, '08. Since then, it's taken me forever, but I've finally convinced my father and oldest sister to get tested. Father's results came back with a solid "negative", as confirmed by a specialist at Stanford University's hospital. My oldest sister's test came back and was basically handed to her by her doc, who - as I later learned - isn't a gastroenterologist. The doc told her that it appeared she was negative. We (sis and I) have both looked at the test and wonder if that's correct. So hey, I thought I'd post her results here and see if anyone else who has CD or is familiar with the test results could help us interpret.

The testing was done by Speciality Labs in California. They read as follows:

Reticulin IGA <1:10 <1:10 titer
Endomysial IGA <1:10 <1:10 titer
Gliadin IGG ABS <10.0 <10 U/ml
Gliadin IGA ABS <5.0 <5 U/ml
Transglut.IGA <4.0 <4 U/ml

All it says at the bottom of the form is:
Reference Range for Transglutaminase IgA Abs:
Less than 4.0 U/ml...Negative
4.0 - 10.0 U/ml...Weak positive
Greater than 10.0 U/ml...Positive

What is the <1:10 mean? Super negative?? What's a "weak positive"??

Any advice anyone could give would be greatly appreciated. When my mother died three years ago, she'd just been diagnosed with rhumatoid (sorry for the spelling) arthritis. She was also an insulin dependent diabetic and was morbidly obese although she was vitamin deficient. Hmmm. I'm just afraid of another family member going undiagnosed for too long. It scares me...what if that's what had happened to my mother...you know?

Thanks so much for your help!!

*Jaystia
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Old 11-16-2009, 03:49 PM #2
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Lightbulb

This thread had a recent discussion about IgA testing:

http://neurotalk.psychcentral.com/thread105601.html

This subject is complex, so be prepared to read things more than once and give yourself time to understand it.
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Old 11-16-2009, 07:57 PM #3
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Welcome to NeuroTalk Jaystia! You've come to the right place and someone should be able to point you in the right direction.

I'm glad they figured out the problem in you, and I hope your sister can find out for sure if she has Celiac or not.

I hope the gluten free diet is helping to make your symptoms go away. And I understand your concern for your sister.
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