Hi, I was wondering if someone would be able to help me out with some thyroid issues
Seems everytime I get mine tested which is at least twice a year the numbers are sometime high that would be the TSH and then they test the T3 and it will come back low normal. Once my ANA test was flagged as high but I guess it was high normal cause at the bottom of the page it says negative?? I've had 3 dr in the last 2 yrs and I need to know what to look for myself. Since there not looking at these tests together but seem to be assuming the lab results from other test are wrong.
On two occasions I have been dx with subclinical hypothyroidism and given a 5 mg dose. Then in about 10 days time (it comes on slowly) I get shortness of breath achy all over and absolutely no energy. And I also gain about 1lb a day, no kidding. When I mean no energy I mean can't even get out of bed fatigued. Just like it more underactive, its weird, soon as I stop then in about 2 or 3 weeks I feel better. So I guess my question is how would they know if it was a autoimmune issue, and not just the regular underactive thyroid? I even got my thyroid scanned because it feels like someone is chocking me all the time. The radioligist suggested thyroiditis? Whats that? Anyways any help would be great, thanks Patricia

Hi Patricia,

It is possible thay you may have Autoimmune Thyroiditis. To really check you would need to get a Thyroid Antibody test done plus FT4, FT3 plus TSH..

Thyroiditis is basically inflammation of the tissue being caused by the antibody attack, it can cause you to swing between hyper and hypo..
Gillian

I get to interview a new doctor on Monday, She comes highly recommended, just hope I don't scare her off with all my curious problems. I sometimes don't know where to start because its been 6 yrs of sickness and no one has any ideas. The only thing that I've been able to figure out is that I do have gluten issues, as well a milk an soy. This I figured out myself, the last doc I fired because she screwed up my celiac test, even though I specifically asked about eatting the stuff before the test. She refused to send me to a GI specialist because "after all the test came back negitive". GRRRRRR
I will ask specifically about thyroid autoimmune diseases and see what happens.
Wish me luck, Patricia

I wish you luck in getting to the bottom of your issues, let us know how it goes.
I also have been tested numerous times for thyroid problems, the only test so far for me that has shown positive, is a Thyroglobulin Antibody test and all other tests have been fine, I still haven't been given a diagnosis of thyroid issues yet, but I also do suffer from Raynauds, Sjogrens, and UCTD.

DaisyMae

Hi, Patricia! I hope things go well for you at your doctor's appt, and that you get a diagnosis. I had an overactive thyroid as an adolescent, which was not positively diagnosed until I was 21, when I had a thyroid storm, and subsequently had a goiter and partial thyroidectomy. But I remember suffering for years from the effects of an overactive thyroid, and the doctors knew something was wrong, but couldn't figure out what it was. I see from your post you've already spent 6 years trying to get a diagnosis!!!!
Hugs, Lois

Ok so I don't get to see the doctor I wanted. Bummer, I'll keep trying, but I do get to see this other guy who has seen me once before.
I tell him what I think, he looks at my thryoid test of the last year and then writes this test out.
Test for TSH if high test for T3
Thats it, is it because I'm blonde or what I don' look stupit, why do they treat me like I haven't a clue. So I went and had the test, and I don't know what its like anywhere else, but in BC they call you when the test are abnormal, so, if you don't get a call, you are perfectly fine YEP thats right, perfectly fine. Thats great, I think,lol
Its like hitting a brick wall.
So sticking with original plan, stay away from doctors. I can't get anywhere with them. When I take my husband, I sometimes get treated better, sometimes they just talk to him just like I'm not there, when I go by myself I'm told I'm seeing to many doctors!!!!! I think I'm starting to get a phobia about doctors lol
Any ways didn't mean for this to be a whine session. I will see that good doctor, I will. Thanks Patricai

Sorry, Patricia, that you are still going through the diagnosis mill. Don't you hate it when doctor's treat us like we're second class citizens, or maybe just subnormal, intelligence-wise!
Of course, it could be that the test came back abnormal, but someone goofed up and forgot to call you. Have you called for the results? Would they give you the actual numbers so that you can compare them yourself with what the normal parameters are?
Keep up the fight!
Hugs

Update, please, Patricia! How are you doing? Did you get to see the "good doctor" yet?

Sorry about that.
No I didn't get to see the GOOD dr yet.
Been feeling awful for the last two weeks coming into the third. This was why I started the Dr marry go round again. It started out with over whelming fatigue, then pain in my right shoulder, that moved down my arm, and now, has gradually consumed my whole body. I feel like I've been hit by a truck. The fluey feeling, sick muscles. Numbness in feet and hands. Thick tongue that won't work properly
So I thought I'd skip the middle guy, and go directly to the neuro. Its not my thyroid, or the dr would have called, don't want to waste my time.
So I get to see him next week. I had asked him in March, if it was ok to come to him when I was crashing, knowing that it was inevidiable
I was taking mestinon back in April, and feeling pretty good on it, my stamina was great, able to go up the ladder stairs really good. Then, I was having really bad problems with my stomach. The first of June, I stopped eatting gluten, and felt so much better, but still had the stomach ache, stopped dairey, and soy, and that all went away. July I stopped the mestinon, and I never went back. Today I just took one to see if it would help. I was kinda freaked about taking mestinon, since the neuro who perscribed it, basically left me hanging, was told to ask my dr about it, if I had problems. She's in Vancouver a 4 hrs drive for me, a lot inconvient. My dr didn't understand why the neuro perscribed it to me, when she told her I didn't have MG. The neuro never bothered to write it in her report. I had to show my dr the bottle, she didn't believe me, she reluctantly perscribed more. But then I felt uncomfortable about taking something that maybe could harm me more then do good. Bt went down and well...........here I am today, wondering is this MS, MG, what???? My cousin was just dx'ed last week with MS, so its in the family
She has the same neuro as me. He the one that flattly told me I didn't have MG with out even seeing tests, and MS was a deffinate NO. After all my MRI was completely clear. Problem was my spine has never been MRI'ed.
So rest is all I can do for now, and god willing when I do get to see him, lightning will strike and mircles of all mircles, he will get a brain
Thanks for asking, Patricia