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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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09-19-2006, 09:19 PM | #1 | ||
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Junior Member
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Hi, I was wondering if someone would be able to help me out with some thyroid issues
Seems everytime I get mine tested which is at least twice a year the numbers are sometime high that would be the TSH and then they test the T3 and it will come back low normal. Once my ANA test was flagged as high but I guess it was high normal cause at the bottom of the page it says negative?? I've had 3 dr in the last 2 yrs and I need to know what to look for myself. Since there not looking at these tests together but seem to be assuming the lab results from other test are wrong. On two occasions I have been dx with subclinical hypothyroidism and given a 5 mg dose. Then in about 10 days time (it comes on slowly) I get shortness of breath achy all over and absolutely no energy. And I also gain about 1lb a day, no kidding. When I mean no energy I mean can't even get out of bed fatigued. Just like it more underactive, its weird, soon as I stop then in about 2 or 3 weeks I feel better. So I guess my question is how would they know if it was a autoimmune issue, and not just the regular underactive thyroid? I even got my thyroid scanned because it feels like someone is chocking me all the time. The radioligist suggested thyroiditis? Whats that? Anyways any help would be great, thanks Patricia |
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09-20-2006, 09:19 AM | #2 | ||
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Junior Member
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Hi Patricia,
It is possible thay you may have Autoimmune Thyroiditis. To really check you would need to get a Thyroid Antibody test done plus FT4, FT3 plus TSH.. Thyroiditis is basically inflammation of the tissue being caused by the antibody attack, it can cause you to swing between hyper and hypo.. Gillian |
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09-21-2006, 01:36 PM | #3 | ||
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Junior Member
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I get to interview a new doctor on Monday, She comes highly recommended, just hope I don't scare her off with all my curious problems. I sometimes don't know where to start because its been 6 yrs of sickness and no one has any ideas. The only thing that I've been able to figure out is that I do have gluten issues, as well a milk an soy. This I figured out myself, the last doc I fired because she screwed up my celiac test, even though I specifically asked about eatting the stuff before the test. She refused to send me to a GI specialist because "after all the test came back negitive". GRRRRRR
I will ask specifically about thyroid autoimmune diseases and see what happens. Wish me luck, Patricia |
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09-29-2006, 11:53 AM | #4 | ||
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Junior Member
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I wish you luck in getting to the bottom of your issues, let us know how it goes.
I also have been tested numerous times for thyroid problems, the only test so far for me that has shown positive, is a Thyroglobulin Antibody test and all other tests have been fine, I still haven't been given a diagnosis of thyroid issues yet, but I also do suffer from Raynauds, Sjogrens, and UCTD. DaisyMae |
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09-29-2006, 12:42 PM | #5 | |||
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Hi, Patricia! I hope things go well for you at your doctor's appt, and that you get a diagnosis. I had an overactive thyroid as an adolescent, which was not positively diagnosed until I was 21, when I had a thyroid storm, and subsequently had a goiter and partial thyroidectomy. But I remember suffering for years from the effects of an overactive thyroid, and the doctors knew something was wrong, but couldn't figure out what it was. I see from your post you've already spent 6 years trying to get a diagnosis!!!!
Hugs, Lois |
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09-30-2006, 04:04 PM | #6 | ||
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Junior Member
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Ok so I don't get to see the doctor I wanted. Bummer, I'll keep trying, but I do get to see this other guy who has seen me once before.
I tell him what I think, he looks at my thryoid test of the last year and then writes this test out. Test for TSH if high test for T3 Thats it, is it because I'm blonde or what I don' look stupit, why do they treat me like I haven't a clue. So I went and had the test, and I don't know what its like anywhere else, but in BC they call you when the test are abnormal, so, if you don't get a call, you are perfectly fine YEP thats right, perfectly fine. Thats great, I think,lol Its like hitting a brick wall. So sticking with original plan, stay away from doctors. I can't get anywhere with them. When I take my husband, I sometimes get treated better, sometimes they just talk to him just like I'm not there, when I go by myself I'm told I'm seeing to many doctors!!!!! I think I'm starting to get a phobia about doctors lol Any ways didn't mean for this to be a whine session. I will see that good doctor, I will. Thanks Patricai |
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