Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


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Old 09-09-2010, 06:33 PM #21
dahlek dahlek is offline
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dahlek dahlek is offline
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Default Well? You are getting some answers....

Tho, not necessarily the ones that you want NOW[!!!] Do keep in mind, that unfortunately some immune issues don't show up in current blood tests for 6-12 months AFTER you've been 'attacked' w/something auto-immune...should it be that. I only make that qualification, because, I'm not a doc...just someone who has been thru the whole medical 'processes' for several different issues over the last few years and feel, you should know..? I'm no doc, just a patient, like you who goes thru a LOT!
You have to stick to your guns!
GO! Get any and all tests done that you can!!!! Why? You've got to eliminate as much as possible of ever so many neuro issues! Some are nasty? Others are nastier, even some can be life threatening. Therefore--that 'red alert' bell or whatever that is telling you to PANIC! Just mite be rite. Tho it's easier to succumb to the panic and just give up. Go get testing, go up and down the diagnostic avenues and get revenge by getting diagnosed...then? Ideally some treatments or relief.
Since I got my 'neuropathy'? I've been diagnosed with certainty with at least 3-4 other neuro or other issues that can affect the neuro systems. It happens? I'm not 'lucky' or 'special', per-se, just did not beat those rare #'s odds. My approach is to 'get that revenge' by knowing as much as what is going on with me, how it mite happen [there's LOTS they have no clue about] and what can and can't be done about IT all.
Every nite, I go to sleep and 'wish' that I'll wake up with 'IT' gone. It's not. So, I make do as best I can, with what I have, and try to learn more and hope that better treatments AND diagnosis procedures can and will be inplace in my lifetime!
GO GET THOSE TESTS! Please! Why? If you don't? Who knows what mite happen? As Long as you've got your BRAIN? You can be a truly functional person! Better to have the brain than not. No? [Meds aside, of course] 's - j
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"Thanks for this!" says:
buttercup1975 (09-13-2010)

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Old 09-13-2010, 06:50 PM #22
buttercup1975 buttercup1975 is offline
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buttercup1975 buttercup1975 is offline
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Default okay.....

Well I have a truly amazing GP who listens and is not going to give up till we find out whats going on with me. This I thank her for! My dermatoligist put me on a baterial medication for this ugly rash, it seems as though they are drying out and disapearing, I just hope they stay away for good when the meds run out. My last 3 Dr. and specialist visits yeilded a high heart rate, so dr ordered an EKG, to verify and yes its high so now i go for a ultra sound thingy so they can look at how my heart is beating to see why my rate has been spiking, I also have an order to see a pulumary lung specialist to exam my lungs further. I have been put through the specialist wringer but this is okay i guess, some test are showing that its not all in my head, and although I am sure I am a long way away from knowing what my problem is, I am closer??? I have also gained 12 pounds in 1 month, but we know its not my thyroid as we tested that.... and it was fine, so they say... Iam not eating anymore, Im actually eating less ....? All of you have been great! And thank you so much for the time you have shared with me! I will update you as I go....
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Old 09-15-2010, 09:29 PM #23
dahlek dahlek is offline
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dahlek dahlek is offline
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Default Hooray! Keep at it, please!

That you've gotten a doc behind you? That is not only amazing, but GREAT!!!!
Be sure to say 'THANK YOU THANK YOU' often and with feeling. Good docs run on such fuel and it is well deserved. Yes testing can be and mostly is...a long drawn out process - mainly trying to zero in on WHAT your problems are, but also eliminating hundreds plus of other possible neuro issues.
Take a look at this web site to help you get a handle on all docs look for!
http://www.neuroexam.com/ Knowing what they do to you and why helps make the whole process easier. The why doesn't hurt either.
I've had similar lung tests to yours [I think] and the only discomfort is some soreness from the tube down the throat. Usually? They knock you out, give you post test instructions afterwards and tell you you're likely to live and wait for the 'results' - usually a week to 10+/- days after the test. WAITING is usually the worst part. Patience is best employed here. IF after 2 weeks? You don't get any WORD? Call, and keep calling!
Specialists? I've got so many I can't keep track of them any more! But I've got a LIST of them! The ones that I see 'every 3 months' are my key docs? I'm long overdue to see my GP! Am I worried? No.
Buttercup? After my pneumonia bout? I didn't have much appetite either! So? I ate what I liked, what I could tolerate, and what I knew I needed. There are times when Jello and puddings can be good food! They go down easy and have 'some' nutritional value. Anything that can be tolerated? Even Ice Cream! Go for it! Of course? Cholesterol mite be an issue? But what's that compared to starving? If it goes down easy, and stays down? GOOD for now. Discuss this with your docs as you get further along with what all is happening. See what diet mite be best for you & supplements as well.
Keep hope and faith in yourself! Get help sooner rather than later! Faster they get to the 'Problem'? Sooner other problems can be avoided.
Hugs and hope in heaps!!!!!!!! 's!!!!!!!!!!! - j
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Old 09-26-2010, 05:39 PM #24
mskitty mskitty is offline
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mskitty mskitty is offline
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Default CHeck out your b12 and check for Gluten sensigivity

Hi hang in here. Get a new dotor. ther are many eastern western doctors who will test you for these things. Gluten -celiac disease docs are reluctant to check there is a hospital that is dedicated to Celiac disease. i hope you feel better-you are not crazy.. what you feel is real and you neeed to find a doc who will help you they are out there.
Quote:
Originally Posted by buttercup1975 View Post
I haven't had any new developments other than the rash coming back after my meds for it ran out... this has also got me thinking that there is also something my body is trying to tell me - right? My left arm is still heavy and the tips are still numb, Im still coughing, still clearing the throat - of what idk... and my fatigue is still there. I have the drive just no energy to do anything. Its really weird, I could sleep for 12 hours and have no problems going back to bed for another 4 or 5. ive been test for Lupus, scalderma, lyme, rumitoid along with other idk blood test all came out NEG except ANA positive at 1:160 and she also told me I had a unique pattern of nucleolar - not sure if thats how it is spelled. . . Im grabbing at straws now.
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Old 10-20-2010, 01:54 PM #25
ginnie ginnie is offline
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ginnie ginnie is offline
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Default auto immune problems

Hi buttercup, I sincerely hope you are better by now. I think there are other reasons other than diet for auto immune diseases. I went to mayo clinic years ago, when I developed alopecia universalis, total hair loss, the worst of three forms of the auto immune disease. My degenerative joint disease followed with osteoarthritis. Mayo sugested that you can indeed come in contact with a pathogen such as contaminated ground water. Some of the auto immune problems are very obscure also. If you cannot get to the bottom, please consider going to Mayo clinic. They provided me with the latest research and tools I needed to help myself. I hope they can find out what is wrong with you soon.ginnie
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