Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


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Old 08-06-2012, 02:35 PM #11
Sandy Sandy is offline
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Join Date: Feb 2007
Posts: 14
15 yr Member
Sandy Sandy is offline
Junior Member
 
Join Date: Feb 2007
Posts: 14
15 yr Member
Wink To all friends

I ended up on prednisone for my RA flare and am still on it, going down from 15 mg. to 14, this week, then 13 etc. I don't like to be in pain or take prednisone (is an occasional glass of wine okay?) but thank all of you for sharing your stories and realizing I and you are not alone.

Let us get well and share the love,
Sandy




Quote:
Originally Posted by Aletha View Post
Hi Everyone,

My name is Aletha and I joined the group for my husbands MS, and my mothers Parkinson's. I have read a lot of responses to people with RA on the LDN chat site regarding help with people that have RA. I saved a few of the stories from individuals regarding this treatment. Please let me know if you would like me to forward them.

My husband has had miraculous results for his MS with LDN. He has been on it for over 2 years and he is doing 2 sports a day. My mom has only been on LDN for about 2 months, but she says she feels better and has more energy. It might be worth looking into for RA. I don't know what kind of effect it may have on Bi-Polar, or on meds one would take for Bi-polar. But I could inquire on the LDN chat site for anyone with questions. Kindest of regards, Aletha
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Old 08-06-2012, 05:37 PM #12
Sandy Sandy is offline
Junior Member
 
Join Date: Feb 2007
Posts: 14
15 yr Member
Sandy Sandy is offline
Junior Member
 
Join Date: Feb 2007
Posts: 14
15 yr Member
Default yes, I agree. I am not takinganything for my bipolar and my RA on prednisone is much

better, but then again my bipolar is much worse. I find it difficult. I think the RA is the worst, until the bipolar gets super bad and then I don't know what to do. Damned if you do, damned if you don't...............




Quote:
Originally Posted by Jojo34 View Post
Yes, yes! I have both RA and bipolar II. I found that, having had RA grumbling around in every joint since childhood, two weeks after commencing semisodium valproate, I had the most excruciating flare up in my life - it's been going for 8 months now, despite stopping bipolar meds. I also had to have steroids for the inflammation, and that resulted in my weighing 50 pounds heavier in 6 months. It was nice being able to wake up and not be in pain though (sigh)

So I'm now off everything, I'm fat(ter), in pain and not impressed with modern medication!

My Psych did explain that he believes there are people who are very sensitive to medication - in my case, if I'm not allergic to it, chances are I'll get horrendous side effects, whatever it is. He says I'll need to be very, very careful with anything prescribed in the future, particularly as not only can bipolar meds trigger a relapse of RA, the RA drugs can trigger mania.

Basically, life can be a catch-22 situation and I've gota live with. however, it's nice to know I'm not the only one!
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Old 08-07-2012, 03:15 PM #13
Sandy Sandy is offline
Junior Member
 
Join Date: Feb 2007
Posts: 14
15 yr Member
Sandy Sandy is offline
Junior Member
 
Join Date: Feb 2007
Posts: 14
15 yr Member
Default What is LDN? Thanks Althea. I need to know what those letters stand for please,

thanks, Sandy


Quote:
Originally Posted by Sandy View Post
I ended up on prednisone for my RA flare and am still on it, going down from 15 mg. to 14, this week, then 13 etc. I don't like to be in pain or take prednisone (is an occasional glass of wine okay?) but thank all of you for sharing your stories and realizing I and you are not alone.

Let us get well and share the love,
Sandy
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