Hello I am new to this site but I wanted to answer your question as best as I can. My husband was just recently diagnosed with CIDP which does affect both CNS and PNS.

hi, I was referred to this thread by Darlene, because I have questions about Chronic Inflammation, which i have been told is an auto-immune disorder. It is characterized by a slight (3 degree) elevation in temp. for a year or more. I have had it for about 5 yrs.

I believe it led to weight gain and diabetes, and likely to an arterial condition which degrades the vascular system's ability to pass gasses, nutrients and wastes. As i gain control over the diabetes and slim down (from a BMI of 49 to 42), the temp also has dropped by about one degree.

Doc's all act like I'm an idiot for thinking a 3 degree temp means anything. Am I alone in my thoughts ? Does anyone know how i should approach research on this ?

Thanks,
StormE1

I understand a bit about auto immune problems as I have a number of them. Presented when I was 29 and went to mayo clinic. That being said, I believe a 3 degree temp increase is considerable. That means your immune system is indeed fighting something. May I ask if you have had any tests? T & B lymphosyte tests are the ones I was given first. They are your fighting responces. Getting your weight down, all of that of course is great for you. I did the same thing and dropped 60 at one point. Have gained about 15 of that back and I struggle too. The American Journal of Medicine has many articles about auto immune problems. If you can access that through a local Teaching hospital, that is a good place to start research. I did that when I was in a trail study at the University of missouri medical Center. I at least found out what was wrong with me. An Endocranologist may be the field of medicine that you may want to investigate. Again I would recommend that you seek a teaching hospital as they do pretty good with DX. JAMA is another name for that particular journal, that gives alot of information regarding auto immune diseases. The Computer file can access articles according to symptoms, or DX. May I ask what your PCP doctor has said so far?. I will be thinking of you. ginnie

I suffer from neuropathy as a result of Behcet's syndrome....auto-immune disorder. And also would say that yes, if you have one auto-immune disorder you are susceptible to getting others unfortunately.

I have a non-specific autoimmune disorder, they think it might be Sjorgens. I also have peripheral neuropathy, autonomic neuropathy, POTS, and unexplained weight loss (I'm down to 88 lbs). I have severe joint and muscle pain and have been in and out of wheelchairs etc. for the past 8 years.

Long story short the doctors don't know where the disorders cross over and what symptoms are due to what disorders.

In May 2011 I went on a gluten free diet at the suggestion of my family doctor. I have noticed a marked improvement in the pain, energy level and a lot less nausea. I have been reading several medical articles that are finding links between gluten sensitivity, auto immune reactions and neuropathy. I'm hoping the gluten free diet really is helping and I'm not just coincidentally in one of my "better" periods.

The articles I have read think the gluten response is similar to proteins utilized in the nervous system which then leads to neuropathies and other neurological responses.

I hope this helps!

my thoughts have always been along that line. i am originally on the thread spinal disorders but to come back to this forum i am also diagnosed with fibromyalgia and peripheral neuropathy and having a thyroglossal duct cyst all discovered because of my um teen tests for my spinal fusion. i have always told my doctors more then i can handle and mention that something underlining is happening i can feel it i just started my first test this morning using that stupid machine although i hear it is a great machine (freestyle) to check for hypoglycemia something i suspected was being caused by menopause symptoms. symptoms for menopause and thyroid disease(which runs in my family on my mother's side 4 of her siblings including my mother have goiter) i have had 4 episodes that feel like menopausal symptoms only much more magnified. in the lat two weeks i have noticed my pupil one bigger then the other temporarily dismissing it because i need to see the eye doctor soon i am regular with my yearly physical checkups but they have been put on the back burner upon doing homework and reading about hypothyroidism because my blood pressure dropped to 76/42 what popped out was the difference in the size of my pupils hens i started giving myself needles like fried brain i am sorry she had to force her doctor i feel like i have to do that to because i believe i am on the right track. i will laugh if what my gut is feeling is right because of my cyst becoming active i feel that this is the underlined problem coming into this forum and reading with tears rolling down my face we do need to be vigilant and always have a advocate with you when going to your doctors. paying close attention to your body and forcing your doctor's to listen. in my case my neurosurgeon driving my train with all other doctors that i feel haven't picked up what i suspect is wrong with me. 3 days have gone by without my neurosurgeon calling me back. i have contacted my primary care doctor and have been working with him about diagnosing if i have hypothyroidism....this has been the most insightful forum i have yet to read.....keep on posting.......keep on trucking.......peace out....

en bloc's reply above is absolutely correct.

I also have Sjogren's, and it was actually the neuropathy caused by Sjogren's that was diagnosed first - burning small fiber, non-length dependent. Although greatly improved and being here for almost two years now, the neuropathy is unlikely to go away completely, and for sure the Sjogren's never will. The neuropathy improved w/o Rx meds but with the use of certain supplements (NOT herbals!).

I've some cranial neuropathy as well as autonomic nervous system problems; however, nothing to the point of incapacitation. The first eleven months were the worst. This second year has been a lot better (keeping fingers crossed).

Best,

Sheltiemom

I have had SS for ten years and now PN for the past year,which is getting worse by the day. I cannot tolerate the traditional PN meds due to side effects, including drying eyes. I plan to see a pain management doctor to see if they can do anything for the pain that I can tolerate.
Do you have any experience in this regard or pearls of wisdom for me.
Thanks, Lynn

Hi, it's my understanding that Sjogrens never goes away. We just manage it with Meds . There is primary and secondary Sjogrens, as yorobably know. I have secondary Sjogrens with the mixed connective tissue disease I Have. I recently started getting the burning sensation in my hands and feel. Probably small fiber stuff. My neuro ws taking to me today that it might be from vitamin deficiency. I did get a b1 shot today. More blood work to come!

I started in 79 with alopecia universalis, wound up with NP, cervial disk disease, degenerative joint disease, arthrits. Yes, there is a connection according to mayo clinic. I try my best to eat healthy, sleep alot, or rest. I lost 65 pounds to take off the extra so my joints don't have all the extra pressure. I wish somebody would tell me how this all works, because I now have berretts esophogus, a pre-cancer in the throat. I now wonder if this is also connected to my immune problems too. I don't know what else I can do to try and help myself. I have 8 nodes in the thyroid, and cancer of the thyroid is in my family. I am pretty worried about all this. I would like to know if anyone else has multipal conditions concerned with the immune system. ginnie