NeuroTalk Support Groups - hashimotos encephalopathy

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- - hashimotos encephalopathy (https://www.neurotalk.org/autoimmune-diseases/164362-hashimotos-encephalopathy.html)

Quote:

Originally Posted by jettwalker (Post 873507)

Diagnosed Aug 2010. Receiving treatment at Houston Medical Center.
8-9 years of sluething to determine. Receiving corticosteroid infusion treatment once a month. It has been very effective for me. Tried oral corticosteroids, without success. Can discuss physician via private email.

Have you seen big improvements.

I was recently diagnosed with Hashimoto Encephalopathy & prescribed Prednisone 60mgs. How are you doing with your experience with this disease? I am looking for a doctor who has experience with this disease in the east coast. Any suggestions? Thanks.

Quote:

Originally Posted by jettwalker (Post 873507)

How to send you private reply? I have a close family member suffering from this condition.

Welcome hashimotos. :Wave-Hello:

Has anyone recovered or seen any one having recovered from this Hashimotos Encephalopathy? Please send a private email to me. thanks.

Can you please tell me what led to your diagnosis? I have antithyroglobulin antibodies (but low) and have been experiencing very bizarre psychiatric symptoms and high anxiety/panic. All other levels in range although on the low side for TSH. They tested me for all the other paraneoplastic conditions that can cause this. I heard that it doesn't matter what your titer is. Just wondering how it came about for you. I wish you well.

The information in this link (and links therein) might help people who live with Hashimoto's Encephalopathy; http://www.thyroid-info.com/hashimot...phalopathy.htm .

Hashimotos with increased inflammation

Hi. First time on. Hoping I can connect with someone with answers. Was dx'd with Hashimotos approx 9 years ago in ER when I developed chest pain. Levels were completely off. At the the time they thought I had lupus also but did not have all the markers. Went on synthroid. Life went one. I slowly got worse. As of this date I have been hospitalized for a TIA. During workup found to have nodule on thyroid. Having difficulty with memory, walking, parasthesia, swelling face, eyes, difficulty opening left eye. Was worked up in hospital and am now being seen at MS clinic. Scarey. But probably best thing that happened. Had testing done. Alll my labs are way off. Sed rate way too high, WBC low, spinal did show one banding only. I have just finished 5 days of solumedrol IV treatments. Some slight side effects but I'm hopeful. However prior to starting neurologist called to tell me she made an emergency endocrinology appt for me next week as my. Thyroid pyroxidase numbers way to high. I'm am currently on 220mc synthroid. Sorry. I know this is wording. A bit overwhelmed