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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


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hashimotos encephalopathy

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Old 04-01-2014, 12:34 PM #1
David Swanson David Swanson is offline
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Originally Posted by jettwalker View Post
Diagnosed Aug 2010. Receiving treatment at Houston Medical Center.
8-9 years of sluething to determine. Receiving corticosteroid infusion treatment once a month. It has been very effective for me. Tried oral corticosteroids, without success. Can discuss physician via private email.
Have you seen big improvements.
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Old 06-07-2014, 12:53 PM #2
seditafrancesca seditafrancesca is offline
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I was recently diagnosed with Hashimoto Encephalopathy & prescribed Prednisone 60mgs. How are you doing with your experience with this disease? I am looking for a doctor who has experience with this disease in the east coast. Any suggestions? Thanks.
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Old 01-17-2015, 01:29 PM #3
hashimotos hashimotos is offline
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Quote:
Originally Posted by jettwalker View Post
Diagnosed Aug 2010. Receiving treatment at Houston Medical Center.
8-9 years of sluething to determine. Receiving corticosteroid infusion treatment once a month. It has been very effective for me. Tried oral corticosteroids, without success. Can discuss physician via private email.
How to send you private reply? I have a close family member suffering from this condition.
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Old 01-17-2015, 02:10 PM #4
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Welcome hashimotos.
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"It is what it is."
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Old 06-08-2012, 09:25 AM #5
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Originally Posted by vasilea View Post
I've just been diagnosed with a rare autoimmune disorder called hashimotos encephalopathy. It means the thyroid antibodies a0lso attack the brain. Started immunosuppressant ssteroid, prednisone tappered down. Next is plasmapheresis. Does anyone have knowledge of my diagnosis or of plasmapheresis?
It is very scary for me. It is frequently underdiagnosed or misdiagnosed. I have stroke like symptoms along with a host of other symptoms. My Neurologist first said that it was a mental issue, and told me that I needed to see a Psychiatrist. I took memory tests and failed miserably. It has been a very stressful time. I have not had any treatments for this yet.
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Old 06-19-2012, 01:29 PM #6
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Default sarry
Dr. Noel R. Rose, Director Autoimmune Disease Research Center, Johns Hopkins Medical Institutions
See if you can email him, he has had very serious problems himself. (from the book Autoimmune Epidemic)

Hope you get to feeling better

j.
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Old 07-18-2012, 08:37 PM #7
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Default Where did you get diagnosed?
Quote:
Originally Posted by vasilea View Post
I've just been diagnosed with a rare autoimmune disorder called hashimotos encephalopathy. It means the thyroid antibodies a0lso attack the brain. Started immunosuppressant ssteroid, prednisone tappered down. Next is plasmapheresis. Does anyone have knowledge of my diagnosis or of plasmapheresis?
Hi, Just would like to know where you went to get diagnosed?
Thanks,
Fari
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Old 10-15-2012, 02:40 PM #8
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Default Descriptions of HE treatments
Quote:
Originally Posted by vasilea View Post
I've just been diagnosed with a rare autoimmune disorder called hashimotos encephalopathy. It means the thyroid antibodies a0lso attack the brain. Started immunosuppressant ssteroid, prednisone tappered down. Next is plasmapheresis. Does anyone have knowledge of my diagnosis or of plasmapheresis?
*edit*

They are trying a lot of different kinds of treatment for HE these days. In addition to steroids, there are various steroid-sparing medications they can use to help avoid the side-effects of steroids. But you usually need to get brought back to somewhere near base line through initial aggressive treatment of either IV steroids, or plasmapheresis.

Best of luck.
Last edited by Chemar; 10-15-2012 at 02:56 PM. Reason: NeuroTalk guidelines
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