Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.]


advertisement
Reply
 
Thread Tools Display Modes
Old 06-26-2012, 08:41 AM #1
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default Venus Williams diagnosed w/Sjogren's

Just heard this today; not sure when she was diagnosed. Maybe that's why was lost in the first round at Wimbleton to very low ranked player.

Any other famous people with Sjogren's Syndrome? Who here is? Can you tell me a bit about your experience?
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-26-2012, 01:40 PM #2
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

Venus was diagnosed 6 months or so ago. She had to drop out of a competition for a short time when first diagnosed. I don't know off the top of my head any other famous people with it.

I have it. I was diagnosed about 4 yrs go, but had it (active) probably 15 years before that, if not longer. Dry eyes/mouth is the tell-tale signs, but Sjogren's can wreak havoc on the body and major organs. Mine has attacked the DRG, brain, lungs, joints, heart, blood vessels, skin...the list goes on.

I am sero-negative for the disease, but a Schirmer's test and lip biopsy confirmed it.
en bloc is offline   Reply With QuoteReply With Quote
Old 08-06-2012, 08:40 PM #3
FacingChains FacingChains is offline
New Member
 
Join Date: Jun 2012
Posts: 5
10 yr Member
FacingChains FacingChains is offline
New Member
 
Join Date: Jun 2012
Posts: 5
10 yr Member
Default Sjogens

I have sjogrens. Right now it is wrecking havoc on my nervous system, earlier in the year it caused some deafness that required me to get a hearing aid. I take plaquenil for my joints. I have had ulcers on my toes,but I quit smoking and they went away...I am very young,healthy,thin....
FacingChains is offline   Reply With QuoteReply With Quote
Old 07-10-2013, 09:58 AM #4
Wreck_Tangle Wreck_Tangle is offline
Junior Member
 
Join Date: Jun 2013
Location: Iowa
Posts: 12
10 yr Member
Wreck_Tangle Wreck_Tangle is offline
Junior Member
 
Join Date: Jun 2013
Location: Iowa
Posts: 12
10 yr Member
Default

Quote:
Originally Posted by Sparky10 View Post
Just heard this today; not sure when she was diagnosed. Maybe that's why was lost in the first round at Wimbleton to very low ranked player.

Any other famous people with Sjogren's Syndrome? Who here is? Can you tell me a bit about your experience?

Not too many people come out these days to say if they have an autoimmune disease. Unless they want to be the spokesperson for it. I could only imagine how many famous people do and keep it quiet. They're just regular people like us trying to get by day by day after they find out.

It was just confirmed for me yesterday, I have Sjogrens from 2 positive blood tests. Whether it's primary or not, I don't know yet. My sister has Lupus and I've been tested for that 3 times now and all negative. But they say it could show up later. She was diagnosed with it on her 3rd blood test.

For me, I'm just really happy I 'finally' found out something. It's been 8 years knowing something was wrong and the last 2 years with much more severity in symptoms. So hellish.
Thought it was MS for 2 years with all the symptoms I had/have. With the worst exacerbation last Spring/Summer.
Wreck_Tangle is offline   Reply With QuoteReply With Quote
Old 07-25-2013, 04:09 PM #5
Vowel Lady's Avatar
Vowel Lady Vowel Lady is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,190
15 yr Member
Vowel Lady Vowel Lady is offline
Senior Member
Vowel Lady's Avatar
 
Join Date: Aug 2006
Posts: 1,190
15 yr Member
Default

Wreck Tangle: Thinking back, do you have any idea what caused your really bad exacerbation last summer? I'm glad you got dx'd and are feeling better.

I had Lupus several years ago...was active and difficult a good 15 years. Had other health problems like migraines after that.

For a short time, I had mild dry mouth and dry eye.

Last year, I went through a weird, heavy duty dental problem + weird, heavy duty stress related to that and other things. Then, during that stressful time, my dry eye and dry mouth quickly worsened. Some thought my lupus had returned. Wrong. Instead, I was dx'd with Sjogren's Syndrome.

Of interest to me is that Venus Williams felt/feels that a VEGAN DIET is helpful for those with Sjogren's Syndrome. She certainly is doing better!!!!!

I have heard that eating healthfully is VERY important for those with autoimmune disorders. Avoiding sugar, alcohol, possibly wheat and dairy as well.

I have cut out all those and reduced meat.

But, has anyone heard of anything official saying that a vegetarian or vegan diet helps those with autoimmune disease? I am VERY curious.

I REALLY want to know as I so desperately want to feel better.

Thank you.
Vowel Lady is offline   Reply With QuoteReply With Quote
Old 07-26-2013, 12:20 AM #6
abbyrition abbyrition is offline
Junior Member
 
Join Date: Feb 2011
Location: Tampa Bay
Posts: 57
10 yr Member
abbyrition abbyrition is offline
Junior Member
 
Join Date: Feb 2011
Location: Tampa Bay
Posts: 57
10 yr Member
Default

Quote:
Originally Posted by Vowel Lady View Post

But, has anyone heard of anything official saying that a vegetarian or vegan diet helps those with autoimmune disease? I am VERY curious.

I REALLY want to know as I so desperately want to feel better.

Thank you.
I have been struggling to get diagnosed for 7 years. 2 years ago I adopted a lifestyle that I refer to as "mostly vegetarian with vegan tendancies" it helped me manage my flairs down to about 2 a year instead of being debilitated for the majority of the year. I did it for many reasons, none of them related to AI, as I didn't know what I had then. However, even though my problems didn't have a name cutting out meat and dairy helped tremendiously for my health. Enough of an impact for me to keep it up for last 2 years. Now, my symptoms have a name - lupus with a possible Sjogren's as secondary. So, I can't tell you they are linked, but I can tell you the change allowed me to have more good days than bad, and that meqnt the world to me. If you're interrested in my food journey, I blogged it so I could keep a record for myself, and help others, as I found it to be overwhelming when I started paying attention to nutrition.
PM me if you want the link.
Good luck, and extra spoons to you!
abbyrition is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vowel Lady (07-26-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Thanksgiving sky: Jupiter, Venus, moon together Mari Bipolar Disorder 4 12-02-2008 11:57 PM
Sjogren's angelrnblue New Member Introductions 3 10-09-2007 01:59 AM


All times are GMT -5. The time now is 06:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.