Originally Posted by Synnove

Glenntaj, I went to a new neurologist 2 days ago.( I am done going to local doctor at the local community hospital) He is a professor at a medical school with the university large 2 teaching hospitals. I have to drive 1 1/2 hours to get there. His specialty and research is neuropathy. I was referred by my general and interventional neurologist. After taking down my rather long medical history, he examined me and said definetly I have neuropathy( I think pretty badly) He diagnosed me with polyneuropathy due to I already have a couple of neuro defecits. Also muscular defecits. He is the first neurologist that has actually understood me when I complain of this symptom. (the vibrating electrical shock type of internal tremors down my spine radiating to torso and extremeties) He said that this is a neuropathy. This is in addition to the other peripheral neuropathy that causes burning and pins and needles and numbness. He has sceduled further testing with EMG etc. We discussed nerve biopsy . He diagnosed me also with gait disturbance. But all this being said, the first thing this neurologist started with, was that he noticed I had a history of club foot from child hood. He told me there is a connection between club foot and neuropathy. Sometimes this neuropathy can manifest itself at the age of 60 and beyond. I am hoping this doctor together with my rheumatologist can find the reason for this terrible neuropathy. I also had a bronchoscopy done last week, and it showed bronchial stenosis. ( I have had this terrible tightness in chest for months) The pulmonologist does Not think it has connection with Wegener's( which I had been afraid it might be) due to not so many bronchi was involved, only one on each side. But I do defenitly feel tight in my chest, a feeling of heavyness some times, and weakness. I have had full cardiac work up, cardiac cath and the whole work even echo. Left ventricle diastolic deficiency.and 3 leaky valves. Cardiologist said I can pass for OK. I am waiting for my fallow up with Pulmonologist and rheumatologist. So glentaj, this was my story. I think I have gone to have evey thing checked up, due to the fact that I have been feeling so sick for the past year. I no want answers. And I want my life back and feel better. If I do not get answers soon, I have already contacted a research pulmonologist with the Mayoclinic up in Jacksonville that specializes in pulmonary vasculitis. I had an apt. but cancelled, I thought I better first see what the docs down in Miami could come up with. The Mayo clinic is keeping my apt open. So we will see