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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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12-27-2013, 04:12 PM | #1 | ||
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New Member
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Hi,
I'm getting pretty desperate here cause of my symptoms and because doctors doesn't seem to know/care/too busy... Background briefly... I've had Diabetes (type 1) for over 20 years and was recently diagnosed with some very rare autoimmune disease affecting short-term memory. Because of that new founding, I've had two rounds of IVIG (Nanogam) and Cortison (NatriumChlorid Viaflo, or something). The second round was about two months ago. The problem is, that just recently I have started to feel really cold. Like freezing. I read somewhere that that the cold may be a problem while on the infusion but didn't find any suggestions that it should be a problem AFTER the infusion? Again, I had no problems while I was receiving the product. Didn't feel ill/cold at all. Now, after seven weeks or so, I feel like I'm freezing to death. And then when put more clothes on, I start to sweat. So whether I'm sweating or I'm freezing. At the same time my need for insulin has raised dramatically. Although the need for insulin raised naturally because of cortison while I was on the infusion but after infusions were done it quickly settled down to a normal state. Now it seems like it has gone back up even thou I'm not havingh any cortison product??? Is these probably because of IVIG? Some withdrawal symptom which hopefully will slowly go away? And for maybe how long does this last??? Or should I still try go to doctor for this... Basically asking here if any of you have a clue whether these are something to be worry about. I appriciate for your answers! |
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12-27-2013, 04:58 PM | #2 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk:
I really think you should contact your doctor, ASAP. Autoimmune disease can affect the thyroid... and being cold like you describe is one sign of low thyroid. Also your need for insulin will go up with infection. If you have a separate issue, and infection, or severe virus...you would have elevated blood sugars, and feel ill. So because your situation is complex, you should seek medical attention ASAP.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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12-27-2013, 11:36 PM | #3 | ||
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Quote:
Last edited by Glassbee; 12-27-2013 at 11:42 PM. Reason: Add more |
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12-28-2013, 12:00 AM | #4 | ||
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I just wanted that I, too have the memory loss. They call mine Brain Misfiring. Since getting getting RSD, I lost most of my voice, hearing(tubes in both ears) & since last year(I could see) Doc said he never saw a change in sight so quick. I can't even be tested for glasses. I get too dizzy to do it! This is not old age, I'm just lucky that I'm the age when I got it. Poor little children get it too! But then they get Diabetes too! Best of Luck!
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12-28-2013, 02:29 AM | #5 | ||
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12-28-2013, 02:42 AM | #6 | ||
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12-28-2013, 06:33 AM | #7 | ||
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12-28-2013, 07:59 AM | #8 | |||
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Wisest Elder Ever
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I think you need to see the doctor who supervises the IVIG treatments. At least call them and discuss your long term reaction etc.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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