[aneczka]

I was diagnosed last week with MMN in the Athens University Clinic, Greece and admitted as in-patient last Saturday. They made me believe from day one that I would get the treatment with immunoglobulins. It is not only disrespectful, it is criminal, because they know best how serious this disease is. In such cases, they shouldn’t promise treatment to the patient if they don’t intend to deliver. They admitted me with my European health insurance card, and the doctor I talked to said "I'll see what I can find," speaking about immunoglobulins. Knowing that the immunoglobulins have been never available in the hospital, and I would have to get them prescribed, for which my insurance would never pay. They did make me believe I would get that treatment !!!!!!!!!!!!!! Instead, they just made more tests, asked questions ("you will not get the discharge report if you don't answer the questions"), confirmed the diagnosis and let me go. I was but a guinea pig, bearing in mind they only have very few MMN cases there at all.

[kiwi33]

Hi aneczka

I am sorry to read that your experience at the clinic was less than helpful.

You are right in thinking that intravenous immunoglobulin therapy is indicated for Multifocal Motor Neuropathy.

An alternative is cyclophosphamide.

Because I am a new member here I am not yet allowed to post links but if you search for "Multifocal Motor Neuropathy" and "cyclophosphamide" and "medscape" you will find helpful evidence-based information in that link.

The information there might help you in talking with the medical doctors at your clinic.

All the best.