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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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05-05-2015, 11:46 PM | #1 | ||
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I am a 44 year old woman who has suffered with numerous medical issues that I believe may be related. I have joint pain, fatigue, nodules that appear and disappear on my elbows, frequent infections(sinus and UTIs with chronic kidney stones) and was diagnosed with a mass in my anterior mediastinum a year ago that is still undiagnosed(insurance issues from hell). I am in constant pain, and had been treated with biologics for seronegative RA(they aren't sure) for a period of time. I have lost weight due to lack of appetite, night sweats that drench me, bone pain, and pain in my lymph nodes. I tested negative for MG, and recently had emergency surgery to implant a pacemaker/defibrillator for Long QT Syndrome, as I coded at the ER after suffering from v tach fainting. Has anyone else suffered similar seemingly unrelated problems like this? I am desperate for a diagnosis as I can't work and my quality of life sucks. I weigh 90 pounds and it's hard to keep that weight on. Thank you!
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05-06-2015, 01:27 AM | #2 | ||
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If your insurance is willing to pay for other diagnostic tests then they should be willing to pay for tests to determine why you have a mediastinal mass. Is your physician ordering specific tests or referring you to physicians that can find out what is going on? Where I used to work, it was usually cardiovascular surgeons and pulmonologists that investigated mediastinal masses.
You need a biopsy. You probably need a mediastinoscopy. |
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